Support Mike's Battle w/ ALS Disease
Donation protected
We are setting up this page for my Step Dad
Mike (Chip) Fiorella
Unfortunately Mike was diagnosed with ALS this summer. Everyone that knows him, knows how active he was and what a Great Sense of Humor he has ! Mike continues to have that sense of humor and is truly trying to keep a positive attitude. However, that's where the positive aspect ends and the negative begins.
The disease has already progressed enough that he is losing his ability to walk and his speech is now affected.
For anyone not familiar with ALS, it is a fast progressing neurodegenerative disease with no cure. It affects nerve cells in the brain and spinal cord and slowly takes away the ability to walk, speak, swallow and breath.
Needless to say this disease will be taking a huge financial toal on Mike and my Mom so we would like to raise money to help with some of this financial burden.
He was just offered the new ALS drug Radicava through Dent neurological institute but the cost is $149,000 per year and is only partially covered by insurance. They also have already been burdened with costs of purchasing a handicap ramp and chair and he will eventually need an electric wheelchair ($20,000 for the one he will need) hospital bed, cost to make the bathroom handicap accessible and eventually individual health care.
So we are asking all family and friends to help us raise these funds so they have one less worry to think about.
Thank you so much for your support
Mike (Chip) Fiorella
Unfortunately Mike was diagnosed with ALS this summer. Everyone that knows him, knows how active he was and what a Great Sense of Humor he has ! Mike continues to have that sense of humor and is truly trying to keep a positive attitude. However, that's where the positive aspect ends and the negative begins.
The disease has already progressed enough that he is losing his ability to walk and his speech is now affected.
For anyone not familiar with ALS, it is a fast progressing neurodegenerative disease with no cure. It affects nerve cells in the brain and spinal cord and slowly takes away the ability to walk, speak, swallow and breath.
Needless to say this disease will be taking a huge financial toal on Mike and my Mom so we would like to raise money to help with some of this financial burden.
He was just offered the new ALS drug Radicava through Dent neurological institute but the cost is $149,000 per year and is only partially covered by insurance. They also have already been burdened with costs of purchasing a handicap ramp and chair and he will eventually need an electric wheelchair ($20,000 for the one he will need) hospital bed, cost to make the bathroom handicap accessible and eventually individual health care.
So we are asking all family and friends to help us raise these funds so they have one less worry to think about.
Thank you so much for your support
Organizer and beneficiary
Colleen Odessa Kemp
Organizer
Batavia, NY
Michael Fiorella
Beneficiary