Love for Annabelle
Donation protected
***UPDATE June 2ND 2017****
Kathie and Adam have made the decision to travel to Mexico so Annabelle can recieve intra-arterial chemotherapy treatment combined with Immunotherapy.
Annabelle will need to have the chemotherapy treatment every 3 weeks for an undefined period of time with each treatment costing around $25,000 and will need the immunotherapy also for the first few bumping the cost up to as much as $45,000 on each occasion.
The family will leave on the 12th of June so they can celebrate Annabelle's 4th birthday at home with loved ones.
We thank you for your continued support of Annabelle and her family.
***UPDATE MAY 4TH 2017****
Last night Kathie and Adam received a call from the Doctors in London where the CED treatment is based. They have had a closer look at Annabelle's MRI and the tumour is growing out of the pons which means the CED treatment will be too risky at this stage.
They have said the radiation may continue to work on shrinking the tumour so it isn't completely ruled out, however not wanting to waste any time, Kathie and Adam have been exploring other options - one of which is an intra-arterial chemotherapy treatment combined with Immunotherapy in Mexico.
***UPDATE MARCH 21ST 2017***
Annabelle has recently been accepted in to a clinical trial in the UK which is called Convection Enhanced Delivery which delivers drugs directly to the tumor. This method involves the surgical implantation of very fine catheters into the brain using a dedicated robotic technique. Early indications are that treatment costs in current trials are in excess of $250,000. Annabelle and her family will need to travel to the UK initially for the surgery and then every 4-6 weeks for infusions at least 6 times so the decision to redirect funds to cover the associated medical costs has been made.
We cannot thank you all enough for your generosity and support through this tough time. Kathie and Adam's main focus now is to buy as much time as possible for Annabelle while we all pray for a miracle.
On the 30th December 2016, our beautiful 3 yr old niece Annabelle Potts, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a highly aggressive and difficult to treat brain tumor found at the base of the brain.
Annabelle was rushed to the Sydney Children's Hospital at Randwick the same day as her diagnosis for further assessment but the prognosis is grim.
The news came as a huge shock to us all but especially to her Mum and Dad (Kathie and Adam) who not only had to come to terms with the initial diagnosis but the fact that they will most likely lose their beautiful little girl. They will no longer be able to look forward to seeing her graduate, get married or any other milestone that those of us with healthy children often take for granted.
Now with Annabelle requiring her parents by her side Kathie and Adam are unable to work and the family are faced with increasing financial pressures because of loss of income and medical expenses.
We decided to establish a Go Fund Me account so Kathie and Adam can focus all their attention on spending as much quality time with Annabelle as possible without the stress of worrying about working or paying the bills.
We love Annabelle as a niece, sister, daughter, granddaughter and friend and your support through this difficult time will mean more to Kathie and Adam than you can ever imagine
Please share xoxo
Kathie and Adam have made the decision to travel to Mexico so Annabelle can recieve intra-arterial chemotherapy treatment combined with Immunotherapy.
Annabelle will need to have the chemotherapy treatment every 3 weeks for an undefined period of time with each treatment costing around $25,000 and will need the immunotherapy also for the first few bumping the cost up to as much as $45,000 on each occasion.
The family will leave on the 12th of June so they can celebrate Annabelle's 4th birthday at home with loved ones.
We thank you for your continued support of Annabelle and her family.
***UPDATE MAY 4TH 2017****
Last night Kathie and Adam received a call from the Doctors in London where the CED treatment is based. They have had a closer look at Annabelle's MRI and the tumour is growing out of the pons which means the CED treatment will be too risky at this stage.
They have said the radiation may continue to work on shrinking the tumour so it isn't completely ruled out, however not wanting to waste any time, Kathie and Adam have been exploring other options - one of which is an intra-arterial chemotherapy treatment combined with Immunotherapy in Mexico.
***UPDATE MARCH 21ST 2017***
Annabelle has recently been accepted in to a clinical trial in the UK which is called Convection Enhanced Delivery which delivers drugs directly to the tumor. This method involves the surgical implantation of very fine catheters into the brain using a dedicated robotic technique. Early indications are that treatment costs in current trials are in excess of $250,000. Annabelle and her family will need to travel to the UK initially for the surgery and then every 4-6 weeks for infusions at least 6 times so the decision to redirect funds to cover the associated medical costs has been made.
We cannot thank you all enough for your generosity and support through this tough time. Kathie and Adam's main focus now is to buy as much time as possible for Annabelle while we all pray for a miracle.
On the 30th December 2016, our beautiful 3 yr old niece Annabelle Potts, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a highly aggressive and difficult to treat brain tumor found at the base of the brain.
Annabelle was rushed to the Sydney Children's Hospital at Randwick the same day as her diagnosis for further assessment but the prognosis is grim.
The news came as a huge shock to us all but especially to her Mum and Dad (Kathie and Adam) who not only had to come to terms with the initial diagnosis but the fact that they will most likely lose their beautiful little girl. They will no longer be able to look forward to seeing her graduate, get married or any other milestone that those of us with healthy children often take for granted.
Now with Annabelle requiring her parents by her side Kathie and Adam are unable to work and the family are faced with increasing financial pressures because of loss of income and medical expenses.
We decided to establish a Go Fund Me account so Kathie and Adam can focus all their attention on spending as much quality time with Annabelle as possible without the stress of worrying about working or paying the bills.
We love Annabelle as a niece, sister, daughter, granddaughter and friend and your support through this difficult time will mean more to Kathie and Adam than you can ever imagine
Please share xoxo
Organizer
Louise Griffiths
Organizer
Palmerston, ACT