CF

This campaign is for my cousin Brianna she has cystic fibrosis and has had an ongoing battle with this since she was born. I’m trying to raise some money for her to help her pay for her medical expenses and to help her get by while she takes on this fight. She’s a 2015 graduate who shouldn’t have to deal with this disease but she does and I would like to raise some money for her. Here’s a message she posted a couple days ago ...

“For friends and family who don’t know, this may be an impersonable way of telling everyone but I don’t really know how to handle any of this so if I’m doing it wrong I apologize..In the middle of January I admitted myself to St Francis Hospital for a two week tune up, to get rid of any infection I had grown over the last year when I had no health insurance. I was released and felt amazing and my doctors seemed very hopeful I would only keep getting better. February 8th I had to leave work because I was having a nasty cough, short of breathe and my chest was so tight. They admitted me for a week because I caught a virus that gave me Pneumonia. Last Thursday I went to my doctor for a follow up appt after being discharged for the second time.. i had went home still on Iv antibiotics and doing my airway clearance routine at home, I thought I was improving. I did feel better although was having a lot of body aches and pains and headaches about half way into my shifts at work and some light headed ness, but I knew the pneumonia and infection were gone. I really didn’t feel terrible. That being said, my PFT (testing for my lung function) on Thursday was as low as its ever been, 17%. It just didn’t make sense to me. While I was there we did a 6 minute walk up and down the hall while monitoring my puls/oxygen levels. They started at 91 and by the end of it had dropped all the way to 81 just from a 6 minute light walk. I was shocked. By the end of the appt my Doctor had decided that the pneumonia took a big hit and left behind permanent damage. The pains and aches I was feeling at work is from my body over working and straining itself to help me breathe. He doesn’t believe there is room for improvement from my lungs and there are no stronger medications to try. He wants me on oxygen 24/7, out of work and resting for as long as possible and I will continue the Iv antibiotics and airway clearance to ensure I don’t get any more infections. We are now talking Lung Transplant. I was not expecting this diagnosis, not in a million years. Those who have known me along time know that growing up I was pretty healthy and never made it very public that I was sick and only in the last couple years have i struggled to keep my disease under control. But that’s what CF does, it gets harder as you get older. I don’t know exactly what this means for my family or for me right now and I still have a lot of Is to dot and Ts to cross. A lot is still uncertain and I’m going back to my doctor on Thursday to make a plan. All I ask from my friends and family during this time is patience and a lot of prayers and healing thoughts. It is unbelievably frustrating feeling like I have no real control over my body. Feeling like I’m doing everything I’m supposed to and my body isn’t getting better. I just hope I have the fight and strength to get through this. I know I have a good support system and my family has already been amazing. Thankyou for reading and I will try to answer any questions anyone has.” All donations are appreciated thank you for your time !