I AM ALS

Unfortunately, I found out that someone very dear to me ended her battle with ALS this week. For 30+ years Jennifer Bullard helped raise me and my closest friend, Ryan (her son). She was my second mom, a true ally and such an amazing woman. As you can imagine, the last 18 months have been hard for her family and everyone close to her. That's why I am asking for you to join me in donating to ALS research in her honor.

Did you know that ALS is one of the most underfunded disease research programs? Over 5000 people are diagnosed yearly in the US and 16,000 people in the US are currently living with this death sentence. It’s not because it’s incurable, but because there isn’t “big enough money” for companies to invest in a cure. Doctors who treat patients are often callous and unsympathetic to the plight of the families and insurance companies have no interest in covering experimental medication and treatment. Leaving so many families to watch as their loved ones whither away with zero hope. It’s devastating.

IT DOESN'T HAVE TO BE THAT WAY!

ALS Research is closer than ever to finding a cure. With more resources at their disposal, there could be a treatment available within our lifetime. You could be a part of that.

The picture attached is one of both of my moms celebrating Christina and I’s marriage. Mama and Papa B (as I called them) had just retired and were set to see the world. Their first trip was our small destination wedding in Italy. This was May 2019 and the last time I remember all of my friends and family being together without a care in the world. I’ll miss her dearly and she and everyone who was lost to this disease deserved better.

I know everyone is tight on budget at the moment, but whatever you can give will help. Maybe one day we can find a cure.

Here are some pictures of our beloved, Jennifer. If you didn't know her maybe you will get a glimpse of the warmth, love and light she brought to the people she touched. She was a loving wife, mother, grandmother, and elementary school teacher who loved the hell out of some UCLA basketball. But mostly she was always your best friend, cheerleader and shoulder to lean on. She really did give the best hugs... We will all miss those hugs...

Want to join me in making a difference? I'm raising money to benefit I AM ALS, and any donation will help make an impact. Thanks in advance for your contribution to this cause which means so much to me.

More information about I AM ALS: I AM ALS is a patient-led, patient-centric community that reshapes public understanding of the disease, provides key resources to the community, and creates opportunities for patients to lead the fight against ALS and search for cures.

This year my family and I have been directly affected by ALS (​​Amyotrophic Lateral Sclerosis). My mother, Becky Wentworth, was diagnosed in October 2021 with Bulbar ALS. This disease comes along with lots of hardships physically, mentally, and emotionally, not only for the patients, but for the families as well. Since she is being directly affected, Becky has decided to raise money to help support the non-profit "I AM ALS". This organization was created by patients for patients. All of the proceeds will go directly to the organization to help better ALS patient’s lives by providing physical resources such as wheelchairs and medical equipment, and also help fund research to become closer to a cure. Please consider donating to help support Becky in this initiative! 

Along with your donation online, my wife and I are making car decals that have the ALS awareness ribbon ($10 each). Please reach out to myself, Jake Wentworth, or my wife, Michelle Wentworth. 

 

Want to join me in making a difference? I'm raising money to benefit I AM ALS, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to my family and me. More information about I AM ALS: I AM ALS is a patient-led, patient-centric community that reshapes public understanding of the disease, provides key resources to the community, and creates opportunities for patients to lead the fight against ALS and search for cures.