National Organization for Tardive Dyskinesia Inc

Imagine not being able to control your movements...

An estimated 750,000 people in the United States have tardive dyskinesia (TD). As shown in the video above, TD causes involuntary movements that range from grimacing or sticking out your tongue uncontrollably to impairing your speech, balance, or ability to grasp or hold things. It can seriously degrade your quality of life. Unfortunately, TD is most often permanent. It's caused by certain types of prescription medications.

In 2019, the National Organization for Tardive Dyskinesia (NOTD) was formed and became the first and only national non-profit devoted solely to improving the lives of those with TD. Since that time, we've done as much as we can to educate patients, their loved ones and healthcare providers. We've also helped raise awareness and advocated for this under-recognized disorder at the state and federal level. Along the way, we've launched online support groups and even published a children's book so that kids understand what it's like for a parent or grandparent to live with TD. Soon we will be publishing A Patient's Guide to Tardive Dyskinesia which will provide readers with an array of important information on living their best life with TD. (For a look at some of our numerous accomplishments to date, click here.)

But we need your help to continue helping those with TD. Experts believe that only 35% of those with this disorder have been formally diagnosed. There's clearly much more work to be done.

Your donation can help our small, but mighty team continue our mission. We have plans to expand our outreach to health care policy makers across the country, hold in-person TD screening events, continue to publish the latest news on developments impacting patients and healthcare providers, provide guidance on how to live better with TD, further connect the TD community, and much more!

We are committed to this cause, but we can't continue this mission without your support. Please give what you can. Every little bit helps. And rest assured that we will use your donation in the most responsible way to make the biggest impact we can for those with this often-disabling condition.

Thank you for your time and generosity.

- The NOTD Team