Rare Bird Foundation

Rare Bird Foundation is a U.S.-based organization dedicated to creating the first-ever globally approved drug to tackle MEF2C deficiency within five years. #strive4five

We are thrilled to announce a collaborative new fundraising initiative: Global Steps for MCHS (MEF2C Haploinsufficiency Syndrome)!

Rare Bird, MEF2C Foundation, MEF2C Hilfsorganisation e.V. are launching an international effort to fund a clinical readiness study led by Weill Cornell School of Medicine. This study is critical for approving a treatment for MCHS. Your donations will help support and fast track the Cornell project.

How you can help:

Donate: Every contribution brings us closer to our goal.

Step Up: Commit to walking 12,000 steps in 24 hours when you donate.

Share: Post a video or photo of your steps with our hashtags: #GlobalStepsForMCHS #MCHSUnite #StepsToCureMCHS #GlobalMCHSChallenge #StepsToTreatMCHS

Together, we can make a treatment available to children and young adults with MEF2C around the world!