Cure CRPS
Tax deductible
Hi everyone!
My name is Grace, I am a junior at Cor Jesu Academy in St. Louis. I have 2 younger siblings, who attend our local Catholic grade school. I enjoy playing racquetball, dance, volunteering, St. Louis Blues and USA hockey, and being involved in various clubs at school.
I was recently diagnosed with CRPS (complex regional pain syndrome and also known as RSD) but I have been struggling with it for about 2 years. I have also been diagnosed with Celiac as of May 2019. My CRPS started in my right ankle and moved to the left side and then to my knees. I now have CRPS in both of my legs and in my hands. I have a mild case of CRPS so my pain is not as high as most people's but I am still in pain almost 24/7. My brother also had CRPS when he was younger, and his was throughout his whole body.
CRPS is a chronic nerve pain syndrome where high levels of nerve impulses are sent to an affected site. It is one of the most painful disorders (for reference see the McGill Pain Index Chart). Best described by many medical professionals as "the suicide disease" because of the high suicide rate associated with the pain.

There are treatments that can help manage the pain but there is currently no cure for CRPS and I will be raising money for RSDSA (Reflex Sympathetic Dystrophy Syndrome Association). RSDSA is a non-profit that raises money for CRPS research. Less than 2% of all money donated to medical research goes to pain research so any help is very important.
Most people have never heard of CRPS including many doctors, so hopefully we will raise awareness and bring more attention to the severity of CRPS.
For more information on CRPS:
The suicide disease - https://www.qt.com.au/news/crps-worst-pain-scale/3167233/
CRPS - https://www.cincinnatichildrens.org/health/c/rsd
What is CRPS - https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Complex-Regional-Pain-Syndrome-Fact-Sheet
Signs and Symptoms of CRPS - https://rsds.org/telltale-signs-and-symptoms-of-crpsrsd/
CRPS Research:
http://rsds.org/wp-content/uploads/2017/01/RSDSA-Lay-summary-FINAL.pdf
https://rsds.org/current-research/
More information about Reflex Sympathetic Dystrophy Syndrome Association (RSDSA): Reflex Sympathetic Dystrophy Syndrome Assoc, (RSDSA) - our mission is to provide support, education and hope to everyone affected by CRPS/RSD while we drive research to develop a better treatment and a cure. https://rsds.org/
You can follow our campaign on Instagram: @c.ya.later.rps and contact us by email [email redacted]
Thank you for your support and prayers!
Grace :)
My name is Grace, I am a junior at Cor Jesu Academy in St. Louis. I have 2 younger siblings, who attend our local Catholic grade school. I enjoy playing racquetball, dance, volunteering, St. Louis Blues and USA hockey, and being involved in various clubs at school.
I was recently diagnosed with CRPS (complex regional pain syndrome and also known as RSD) but I have been struggling with it for about 2 years. I have also been diagnosed with Celiac as of May 2019. My CRPS started in my right ankle and moved to the left side and then to my knees. I now have CRPS in both of my legs and in my hands. I have a mild case of CRPS so my pain is not as high as most people's but I am still in pain almost 24/7. My brother also had CRPS when he was younger, and his was throughout his whole body.
CRPS is a chronic nerve pain syndrome where high levels of nerve impulses are sent to an affected site. It is one of the most painful disorders (for reference see the McGill Pain Index Chart). Best described by many medical professionals as "the suicide disease" because of the high suicide rate associated with the pain.
There are treatments that can help manage the pain but there is currently no cure for CRPS and I will be raising money for RSDSA (Reflex Sympathetic Dystrophy Syndrome Association). RSDSA is a non-profit that raises money for CRPS research. Less than 2% of all money donated to medical research goes to pain research so any help is very important.
Most people have never heard of CRPS including many doctors, so hopefully we will raise awareness and bring more attention to the severity of CRPS.
For more information on CRPS:
The suicide disease - https://www.qt.com.au/news/crps-worst-pain-scale/3167233/
CRPS - https://www.cincinnatichildrens.org/health/c/rsd
What is CRPS - https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Complex-Regional-Pain-Syndrome-Fact-Sheet
Signs and Symptoms of CRPS - https://rsds.org/telltale-signs-and-symptoms-of-crpsrsd/
CRPS Research:
http://rsds.org/wp-content/uploads/2017/01/RSDSA-Lay-summary-FINAL.pdf
https://rsds.org/current-research/
More information about Reflex Sympathetic Dystrophy Syndrome Association (RSDSA): Reflex Sympathetic Dystrophy Syndrome Assoc, (RSDSA) - our mission is to provide support, education and hope to everyone affected by CRPS/RSD while we drive research to develop a better treatment and a cure. https://rsds.org/
You can follow our campaign on Instagram: @c.ya.later.rps and contact us by email [email redacted]
Thank you for your support and prayers!
Grace :)
Organizer
Donna Mueller
Organizer
Saint Louis, MO
Reflex Sympathetic Dystrophy Syndrome Association RSDSA
Beneficiary