Erin needs accessible bathroom
Donation protected
My wife Erin has been confined to bed and unable to walk or sit upright due to multiple medical conditions including chronic pain, chronic fatigue syndrome (CFS/ME) and Dystonia a movement disorder for the last four years. Though she puts a brave face on it, she knows all too well that lying in bed all day stops being fun when you don't have any choice. Unfortunately our house was not built for people with disabilities, so she can't even get out of the bedroom without a lot of help from me, and every time we do that her pain fatigue and multiple other symptoms increase for a fortnight. It has been very difficult for friends to visit, so she gets lonely when I am at work. She has barely seen outside the house for years, but perhaps worst of all she has not been able to have a shower, something we take for granted.
Recently we borrowed as much as we could from the bank and are getting an extension done to the house. This will incorporate a new bathroom, big enough for a special shower bed in which she can be moved from the bedroom to the bathroom and back again for a shower. The extension will have special wide doors throughout so that I can wheel her in her bed out onto the verandah sometimes if it is a nice day. The cafe blinds - ziptrak type is what we were looking at for outside on the verandah area. These have a blockout feature which means that Erin can go outside but still have the light blocked out so she doesnt get migraines from the light.
Erin is extremely light sensitive which is why she needs day blinds which have partial blockout as well as full blockout blinds for the night time - just in our bedroom and the guest bedroom.
Our bedroom will be joined to another room so that people will be able to come to dinner without having to cram into the bedroom.
Also we have a new guest bedroom which will double as a second lounge room because the current lounge room is not accessible for Erin in the bed. This means that when friends come over Erin can see them in the new lounge room and interstate family can have somewhere to stay when they visit us.
We needed to replace exisiting carpet in bedroom end of the house to tiles as due to multiple chemical sensitivity this is the only thing Erin was not allergic to as the carpet was about 40 years old! Also the shower bed cannot be moved on carpet and carpet cant get wet so really there was no option but to replace the carpet. Also the rooms havent been painted since about 1990 and we are having to use clay based paint because Erin is allergic to acrylic paint as a consequence of having the rooms tiled and painted we are having to move everything out for about a month to get it done - this also allows time for the smells to start to disappear. Because Erin needs to be in a hospital bed she cant just camp on the couch or floor however that is what I will be doing! Erin needs to go to respite accommodation for this time that is why we are asking for help to pay for this - as it is only partially funded by the government and without going to respite the renovation cannot be finished.
So far so good. Unfortunately, the amount we were able to borrow did not cover all that we need. We are asking for money to help pay for these things and anything else that pops up:
Blinds
Cafe curtains - ziptrak blinds for new verandah area
Sofa bed
Built in Wardrobe
Roller door
Concertina door to divide our bedroom from the bedroom next door
Help to cover some of the respite accommodation costs
small generator
The renovation is now in full swing and we really need the money as soon as possible while somethings are not as urgent as others respite is happening from the end of january for a month so this will need to be paid for within a couple of months.
Please contribute to our campaign. Erin has been through a lot and this will help to make her life that much better
Organizer
Erin Mckenzie-Christensen
Organizer
Surrey Downs, SA