LOGAN'S LOWE CONFERENCE

MEET LOGAN SYKES- We call him Logan Bear, he is my grandson. Logan has been through 17 eye surgeries, numerous appointments, 15 doctors. My son and daughter-in-law found out their youngest of three has Lowe syndrome. This syndrome affects brain, eyes , and kidneys. They just informed us Logan is passing kidney stones and they have Logan on quite a few medications. The life expectancy of this syndrome is a good 30-40 years. What I've read on this syndrome, there are 250-2,000 carriers, but only about 250 have the syndrome in the United States, Lowe syndrome is very rare, there is not a doctor in our town that has ever heard or seen a child with it. My son and daughter-in-law travel to San Antonio twice monthly for glaucoma appointments. They just started going to Dallas for Logan's kidneys because his kidneys have too many calcium deposits , and they go to Austin once every few months for neurologists. I'm making this page because my daughter-in-law told me about a conference comming up in Orlando, Flordia. Right across the street is Disney World. This Conference only happens every 3-4 years. I want to help fund $10,000 so that they can go and meet some boys, so Logan can meet boys with Lowe syndrome. The closest boy is 4 1/2 hours away and with my son and daughter having 8 appointments in January alone for Logan's kidneys and glaucoma, the financial difficulty of coming up with money for this trip seems impossible. I also want them to be able to take there other two kids, as well as Logan, on this much needed vacation/conference that they will benefit from greatly. A majority of these children and their parents will be at this conferece as well as the Lowe syndrome researchers So, PLEASE, HELP ME help them.

HUGS,

CAP N' JACK