Syndrome Okur-Chung Isaac Goncalves

My name's Paulo and I have a son with 3 years old, and recently was diagnosed a Syndrome very rare(Syndrome Okur-Chung) and I need to go to USA( New Jersey) to get a possible treatment and therapies to helping my son having better life quality. He is a boy so full of life always with a smile and happy child with so many limitations. If you require more information please you can contact me on +3530874690259. Many thanks