Mission for my Mom's surgery for her Rare Syndrome

Hello my name’s Ethan. I started this fundraiser for my mom because she needs to have life-saving surgery! A few months ago she was diagnosed with the rare syndromes; median arcuate ligament syndrome (MALS) along with several other health conditions. There's only approximately 6554 people in the US that suffer from the rare disease MALS. Only 1 to 2 percent of that number, have the rarer version my mom has. Median arcuate ligament syndrome (MALS) is an anatomical abnormality that occurs when a person’s main abdominal celiac artery is being compressed by the median arcuate ligament. The compression cuts off blood flow to her organs, nerves and muscles, causing improper organ function along with other debilitating complications. Since the ligament’s also attached to the diaphragm, it interferes with lung function, breathing, and lower esophagus functions disrupting nutrient, digestion, and the circulatory system. Life-saving surgical intervention to remove the ligament, address the nerves along with fixing the crushed artery, is the only treatment option. The untreated compressed artery weakens at the pressure site, causing the backed up blood to blow up like a balloon, eventually rupturing.  Which is why there’s a high mortality rate in untreated, diagnosed patents. There aren’t any medications, homeopathic treatments, therapies or other options available. Nor will the condition go away, or get better on its own. Surgical intervention is crucial, once patients are diagnosed. My mom went through extensive medical testing, radiology procedures, screenings, evaluations, and assessments before having her diagnoses confirmed.  My mom’s years of misdiagnosis negative impacted her health, records and ability to finally be diagnosed. I’m grateful she’s been diagnosed but saddened that there’s absolutely no system, no nothing to help people with extremely rare disease.  Since the syndrome is so rare, there’s only a handful of US surgeons experienced in the delicate, complex surgery. There’s also the unfortunate reality behind in network insurance providers, which is why we’ll need to travel to another state, and pay for the surgery. My mom's worked very hard to overcome the challenges brought on by being a single parent. I'm proud of my mom, she’s given me an incredible life, which is why I started this campaign. She purchased our home herself while earning her BA over 10 years. State and federal programs aren’t designed to assist people with no income, not even the housing programs. SSDI doesn’t recognize rare diseases, like MALS as a qualified condition. Its so rare its not even on the compassionate allowance list.  She hasn’t been able to have the surgery she needs, so she's hasn't been able to work. The donations raised will be used for health maintain and medical, and related expenses. Thank you and God Bless!