2024 Super Bowl Plunge for John Hudson #HealEB
Donation protected
It’s that time of year! Super Bowl Sunday and once again Gene will be breaking out the fur line speedo and diving in the ocean for a great cause.
With thousands of people jumping in the ocean to raise money for the Make-A-Wish Foundation this day sets the bar for people helping people. Gene will be jumping in to help fundraise for our friend, John Hudson – aka – The Strongest Man in the World!
John Hudson is now 21 years old and his disease has progressed, leading John to start palliative care. As his body feels the impact of this devastating disease, there is a real possibility that there will soon be a cure for EB. John is fighting to remain alive so he can experience a cure and be with his family for as long as possible.
Many of you are familiar with John Hudson but if you're new and want to learn more, please take a look at one of the videos below and you can hear JH better explain life with EB and what his days are like.
Interview with Special books by Special Kids 2022
Chris Hemsworth and Real-Life Superhero John Hudson | Venture into Cures 2020
Tunnel2Towers Boy With Rare Skin Condition Gets New Smart Home 2018
Singing with his Dad, Johnny 2015
Where will your donation go?
100% of any donations from this GoFundMe event will go directly to the family of John Hudson. There are so many medical and healthcare expenses not covered by insurance.
What is EB?
Epidermolysis Bullosa -- a rare cell disorder which causes chronic blisters, wounds and infections on both the outer skin and internal organs. John, like other kids suffering from EB, is in constant, intractable pain and requires highly specialized medical care, equipment and supplies. EB presents as blister and wounds, equivalent to second and third degree burns which cover 80% of his body, both internally and externally. As a result, John Hudson is covered in bandages daily, from head to toe, to both address his existing wounds and to protect his skin from trauma and new wounds.
Most recent update on JH:
Recently, JH was admitted to CCH (Cincinnati Children’s Hospital) to place a PICC line so he can start TPN (Total Parenteral Nutrition), have easy access for blood draws and to receive transfusions and IVIG infusions. This is usually at least a 2 week in patient stay to get the nutrients balanced correctly (electrolytes, lipids, sugars etc) over a manageable period (eventually the taper will be down to 12-16 hours of run time for TPN) so his body can absorb the nutrients and use them to heal his wounds, take the anxiety out of eating, give him more energy etc. So far the PICC placement has been the easiest part- and this is NOT easy with EB- as he has struggled with low hemoglobin, transfusions, fevers and diarrhea.
John Hudson is in good hands and we are hopeful to be rid of these issues and home before the Super Bowl.
Organizer and beneficiary
Catherine Rode
Organizer
Staten Island, NY
Faye Dilgen
Beneficiary