Help Meghan Battle Mitochondrial Disease and EDS

Spunky, determined, and sassy college freshman. Tall and blonde. These characteristics describe Meghan. Heart racing, joints sublexing, unable to eat due to constant nausea, abdominal swelling, enlarged liver, severe brain fog, extreme fatigue, herniated brain, reacts to any and everything...These characteristics also describe Meghan. Recently, Meghan’s body began attacking itself. Meghan has had numerous labs, imaging, scopes, port studies and more over the last few weeks. She’s spent more time in Richmond than home. She’s going to have a port revision to replace the non functioning one in a couple weeks. They placed a picc line to help her with her much needed fluids over the next few weeks. She’s lost so much energy and her heart rate is super reactive. A mass or lump appeared on her abdomen almost three weeks ago. She had an ultrasound done. They wanted to check it and her abdomen due to increasing nausea, pain and inability to eat. Meghan’s traveling days are not over. She will also have the IVC filter placed the stop blood clots from moving to her heart removed prior to scans. She will be heading to Richmond for several scans to evaluate her enlarged liver and a lesion they have found on it. There will also be follow up appointments with Endocrinology, GI and neurology. This isn’t easy. As parents, we struggle. We’re supposed to be able to provide the medical care Meghan needs. The out of pocket costs($550)of several medications Meghan requires every month plus the added travel expenses are stretching an already stretched budget. This girl is a fighter. She has no other choice. I know we can’t take it from her. We wish we could. For now, we remind ourselves that we’re strong, she’s stronger and God has this.