Help Fauzan and Nabila have Bone Marrow Transplant
Donation protected
We are Fauzan (25) and Nabila (20), siblings born with Sickle Cell Anaemia (SCD) which is a genetic disease that causes chronic pain and damages different body parts due to lack of oxygen going around the body. After several years of battling SCD and various clinical management experiments, we’ve came to learn that only gene or stem cell therapy are the only effective long term solution. Currently the NHS isn’t in position to offer any of the two to either one of us for various reasons.
We are forced to privately seek Bone Marrow Transplant or Stem cells from partially HLA matched family members also called haploidentical transplant for both Fauzan and Nabila. This wasn’t an easy decision but due to our continuously deteriorating health, We aren’t left with much choice.
Currently, Fauzan has lost complete mobility due to avascular necrosis in both hips. He’s had chronic back pain since 2015 due to bone damage in his spine (T6-T8) and in 2014, Fauzan developed paralysis in his lower lip and chin due to a major crisis in his jaw. As for Nabila, she is also showing signs of avascular necrosis in left hip. When 13yrs, Nabila was diagnosed with chronic pancreatitis which results in excruciating chronic abdominal pains, and at 16yrs, she was diagnosed with bone damage in the spine (2 discs no longer receive blood or oxygen).
We are both SCD activists who co founded WEREN’T BORN RICH C.I.C a nonprofit organisation to raise awareness and advocate for SCD. We support those affected with SCD in the community with benefits and welfare applications and housing issues. We assist those affected with SCD with issues regarding education and employment. This work as however been extremely affected by our ill health and COVID-19.
We need a total of £85,000 for the both of us to undergo the transplant with a specialist doctor in India who has successfully performed carried out this procedure on others with SCD. We have so far raised £50,000 both on/offline and therefore seeking £35,000 to cover the outstanding balance.
This is why we are starting our #SAVEFAUNAB challenge:
We are asking 3,500 people to donate £10 each to make £35,000.
Once you’ve donated your £10, please make a small video challenging 10 friends/family to do the challenge too. This will help us raise the remaining balance quickly as well as the much needed SCD awareness.
Please don’t forget to use the following Hashtags:
#SAVEFAUNAB
#CHALLENGE3K4£10
#CHALLENGE£10
#FIGHTINGSICKLECELLS
#WEWILLNEVERLETITWIN
PayPal -
Thank you for reading this and for your support ❤️ remember if you cannot donate you can always share and spread awareness on our behalf. Thank you again ❤️
We are forced to privately seek Bone Marrow Transplant or Stem cells from partially HLA matched family members also called haploidentical transplant for both Fauzan and Nabila. This wasn’t an easy decision but due to our continuously deteriorating health, We aren’t left with much choice.
Currently, Fauzan has lost complete mobility due to avascular necrosis in both hips. He’s had chronic back pain since 2015 due to bone damage in his spine (T6-T8) and in 2014, Fauzan developed paralysis in his lower lip and chin due to a major crisis in his jaw. As for Nabila, she is also showing signs of avascular necrosis in left hip. When 13yrs, Nabila was diagnosed with chronic pancreatitis which results in excruciating chronic abdominal pains, and at 16yrs, she was diagnosed with bone damage in the spine (2 discs no longer receive blood or oxygen).
We are both SCD activists who co founded WEREN’T BORN RICH C.I.C a nonprofit organisation to raise awareness and advocate for SCD. We support those affected with SCD in the community with benefits and welfare applications and housing issues. We assist those affected with SCD with issues regarding education and employment. This work as however been extremely affected by our ill health and COVID-19.
We need a total of £85,000 for the both of us to undergo the transplant with a specialist doctor in India who has successfully performed carried out this procedure on others with SCD. We have so far raised £50,000 both on/offline and therefore seeking £35,000 to cover the outstanding balance.
This is why we are starting our #SAVEFAUNAB challenge:
We are asking 3,500 people to donate £10 each to make £35,000.
Once you’ve donated your £10, please make a small video challenging 10 friends/family to do the challenge too. This will help us raise the remaining balance quickly as well as the much needed SCD awareness.
Please don’t forget to use the following Hashtags:
#SAVEFAUNAB
#CHALLENGE3K4£10
#CHALLENGE£10
#FIGHTINGSICKLECELLS
#WEWILLNEVERLETITWIN
PayPal -
Thank you for reading this and for your support ❤️ remember if you cannot donate you can always share and spread awareness on our behalf. Thank you again ❤️
Organizer
Fau Zee
Organizer
England