Help me get treatment for Adhesive Arachnoiditis

My name is Victoria May. I am 26 years old. Last year I was diagnosed with Idiopathic Intracranial hypertension. The condition involves my brain producing or not correctly absorbing cerebral spinal fluid. It causes my brain to constantly feel like it's being squeezed and it can cause damage to my vision. After my diagnosis last year I was placed on the medication acetazolamide, which lowers the brain's production of spinal fluid. My IIH went into remission until April of this year. It returned with a vengeance and even my medication was no longer helping the pressure. At times, when the pressure is at its worst, a spinal tap (lumbar puncture) can be the only thing to give me temporary relief and that's exactly what I had done twice in June of this year and once in August. They were done in the ER without imaging to assist them in where the needle was going and they caused me a lot of pain. The one I had done in August caused a cerebral spinal fluid leak which I had to have blood injected into my own epidural space to try and help close the leak. After the blood patch I felt the best I had in months, but only for 2 days. On the third day, I woke up to searing pain in my lower back that would not let up. I thought it was normal, but a few days later ended up back in the ER to be checked for a hematoma, inflammation, or compression of the nerves in my lower back. I had a lumbar MRI and they did not see anything wrong in this MRI. As weeks went by I began having sensations of bugs crawling on my legs, burning pain in my lower back and legs, and electric shock sensations going from my lower back and traveling down my legs as well as severe tightness in my lower back and full body muscle spasms. After getting no answers from my doctors, I did my own research and came across a condition called Adhesive arachnoiditis. The spinal sac that is punctured when a spinal tap is done is called the dura. It protects your spinal cord and the spinal fluid inside. The dura is divided into 3 layers, the dura, the arachnoid layer, and the pia. The Arachnoid layer is susceptible to trauma and inflammation. Anything that damages or irritates this layer (spinal taps, epidurals for childbirth done wrong, surgery, blood patches, etc) can cause inflammation in this layer and once this inflammation is started it can never be stopped, just suppressed. (This doesn't happen often though and this condition is rare). The nerves inside the spinal sac in the lower back float around in the spinal fluid freely and resemble a horse's tail. When inflammation starts in the spinal canal, it causes scar tissue to form uncontrollably. This scar tissue causes these free floating nerves to begin to clump together and to the spinal sac wall. Instead of firing separately, they begin to misfire and cause immense pain. The pain can be described as burning, stinging, electric, piercing. It is excruciating. If the inflammation is not suppressed with steroids or other anti inflammatory meds, the scar tissue will continue to form and spread throughout the spine and can eventually get into the brain. This condition has no cure and it is very easily misdiagnosed or ignored because it is often caused by doctors' mistakes (and they don't make you aware that this condition exists when you have invasive spinal procedures) and it is rare so many radiologists miss it in on imaging. I had another set of MRI images done in September and sent my image disc to Dr. Forrest Tennant. He is one of very few specialists in the world for this condition. He gave his honest opinion on my MRI and diagnosed me with AA. He is no longer in practice though and just doing research on the condition now so many doctors ignore his diagnosis. One form of treatment that has shown promise in some with AA is stem cell therapy. And this is what I am looking to do. Stem cell therapy is still experimental in the United States. Many people with my condition have received stem cells and have had no improvement while others have become symptom free and are close to living the life they were before they developed this. This condition keeps me from working and from living a life free of pain. I have found a doctor whom I trust in Columbus, Ohio who is looking to perform stem cell therapy on me. He has helped others with AA. His name is Dr. Shehadi. In adults, one source of stem cells is bone marrow. He will remove bone marrow from my hip bone, spin it down and remove the stem cells, combine them with exosomes which are even smaller cells than stem cells, and then deliver them back to me through an IV. Stem cells provide an anti inflammatory affect and are very good at repairing damage in the body. Stem cell therapy in the United States is not covered by insurance. I will be using any money I raise towards my treatment which is approximately $6100. We will also need to stay in a hotel the night after my procedure to make sure I have no complications and we will need gas money and food. I cannot explain how much it would mean to me to have help in coming up with such a large amount of money. I know there is no guarantee that this treatment will help me, but I believe it is worth a shot since it has helped others and there is a chance it will significantly decrease my pain and discomfort. I have been praying about this daily. If you decide to donate, I can't thank you enough for your help. And even if you can't, I appreciate you reading my story. I also ask that you please share my fundraiser, so others may help if able and so others may become aware that this condition exists and is a risk factor of any invasive procedure done in and around the spine. I will update everyone with my story as soon as I can. Thank you so much.