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Help Put Jour'nee To Rest

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My daughter Jour'nee was born 3 Months Early, On Monther's Day 16' at 27 weeks. I went into Labor unexpectedly. A few days after having her i was told she had a Grade Four Brain Hemorrhage. In other words my little girl had a brain bleed at the worst stages on both sides. I was asked if i wanted to let her go, and told she will never have a regular life, a life in and out the hospital, of course i would never let go and i have to give my baby girl a chance at life. They gave her brain surgery on add a temporary shunt until she was big enough to have a permanent shunt, after a few weeks latee she received a shunt inside of her head so she can have the fluids drain, and it really helped. Three months later she receives a Gtube because she can't suck or swallow and now she's almost ready to come home. Out of nowhere she got really sick and I didn't know why. They found out she had an infection in her brain, they had to remove her shunt and add another temporary one until the infection went away, sadly the infection was not going away as much as they tried so they took it out and added a different one. They asked me can they put the medication inside her brain which was very risky but the best bet. Once they did Jour'nee had two big seizures, one 8 minutes, one 13 minutes. My whole world stopped. They told me her brain was damaged so much. She was having seizures for a few days. After her 8th brain surgery the infection is almost cleared, but while trying to clear it her brain was tremendously effected. The doctor called us in for a family meeting and told me my daughter will have cerebral palsy , she might not walk, she might not talk. We wont be sure until she is a little older. They said she will be in and out of the hospital and have many medical problems and expenses. As of August 25, 2016 at 7:55pm , i lost my best friend. I lost my best friend in my arm, wow . Im still lost for words, its so many people that don't want their children, i wanted her more than anything in this world, i had dreams of laying next to her. Waking up next to her. My motivation to wake up. I lovee you so much Jour'nee, just know i NEVER left your side, holding you telling you its gonna be okay before you took your last breath, no one in this world will ever understand my hurt right now . My world is upside down, but i am SO PROUD of you Journ, you made me a WOMAN, a better woman , you made me realize what love really was. As a mother you're supposed to protect your seed , i am so sorry I couldn't help you, i wish I could take all your problems and pain away, but you my baby, you are a soldier. 3 1/2 months you FOUGHT, you literally fought til you couldn't anymore. Having to bury your own child is horrible, and sadly its not cheap. I just want to lay my baby to rest . The right way
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  • Anonymous
    • $20
    • 8 yrs
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Organizer

Lay Lewis
Organizer
Ontario, CA

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