Wuollet medical fund
Donation protected
Hello friends and family! I am Kayla, one of Kayleighs good friends for 20 years! I am setting up a gofundme page on behalf of their family to relieve medical financial stress, funds for gas, living and food, and for the long journey of medical needs and equipment for their new baby Mase. 100% of the profit will be given to the Wuollet family. Please consider donating to this sweet family. They truely are one the most caring families I know and they do anything for everyone else. My heart is so broken that they are going through all of this :'( . Here is the story of what happened from Kayleigh :
Tuesday February 7th, 2017, we welcomed our handsome son Mase Orlo Wuollet into the world. He was 9 pounds 2 oz and 22" long. He was born at home as planned, but didn't transitionwell after birth. He never really took a deep breath or gave us a good cry and his oxygen was low. We were both transported via ambulance to Buffalo hospital where it was discovered Mase had fluid in his left lung. Since Buffalo isn't equipped to deal with brand new babies in this way, Mase was transported via ambulance to children's Minneapolis NICU, and that's where we remain. Shortly after arrival doctors here discovered there were issues with Mase's bowels. He wasn't having any bowel movements. They placed him on a feeding tube and gave him some of my expressed colostrom to get things moving. Shortly after, his stomach started having bile back up. They stopped feeding him as it wasn't going anywhere. The hope was that he'd get cleaned out and begin feeding again once he did. Days passed and different methods were used to try and get him to go- nothing. They finally irrigated him thinking it'd be a one time thing. They needed to get him cleaned out, as he was full of contrast from his first x-ray and they couldn't do subsequent x-rays to look into why he wasn't having bowel movements until it was gone. In the meantime, they took a biopsy from his colon to check for nerve cells. That biopsy was negative- giving us an answer finally: a disgnosis of hirschprungs disease. This meant a portion of his colon didn't have nerve cells that allow you to "push" a bowel movement. Mase had surgery yesterday. A pathologist was present and they took biopsy after biopsy to check for netve cells trying to locate where they began. After an agonizing 8+ hours of surgery and 16 biopsies later, it was discovered Mase has no nerve cells in his colon/ lower intestine, nor most of his small intestine. His nerve cells begin in his jujunum intestine: leaving him with 40cm of healthy intestine, or about 20% of his total bowels. This was devastating news. The amount of intestine he has is not enough to absorb enough nutrients to allow him to grow properly. He'll need permanent IV to supplement him to allow growth, and a feeding tube directly into his stomach for constant drip feedings to slow that digestion down and allow as much nutrient absorption as possible. He has not, and will not be allowed to eat orally for a long time, if ever. This mama is absolutely devastated and heartbroken :'-( i have waited with abated breath since his birth to nurse him and have that special bond. This is one of the hardest parts for me. He's very hungry and wants to eat badly :-'( on top of all this; Mase has severe apnea. When he gets in a deep sleep he stops breathing or breathes very shallow and his oxygen levels drop. They will be doing genetic testing to look for a condition sometimes associated with Hirschprungs to explain why he has the apnea. We still have a lot of unanswered questions and we're processing a lot of information. I'm posting this to ask you to please pray that the biopsies taken during surgery somehow; by the grace of our loving God, cone back from final pathology with a slightly better disgnosis: that there are nerve cells lower than initially thought that would allow him better nutrient absorption and be allowed to eat orally. Although we face a long and difficult journey, we trust in the Lord for He is good. We will walk whatever path He has chosen for us. Thank you all for your prayers, love and support!
Tuesday February 7th, 2017, we welcomed our handsome son Mase Orlo Wuollet into the world. He was 9 pounds 2 oz and 22" long. He was born at home as planned, but didn't transitionwell after birth. He never really took a deep breath or gave us a good cry and his oxygen was low. We were both transported via ambulance to Buffalo hospital where it was discovered Mase had fluid in his left lung. Since Buffalo isn't equipped to deal with brand new babies in this way, Mase was transported via ambulance to children's Minneapolis NICU, and that's where we remain. Shortly after arrival doctors here discovered there were issues with Mase's bowels. He wasn't having any bowel movements. They placed him on a feeding tube and gave him some of my expressed colostrom to get things moving. Shortly after, his stomach started having bile back up. They stopped feeding him as it wasn't going anywhere. The hope was that he'd get cleaned out and begin feeding again once he did. Days passed and different methods were used to try and get him to go- nothing. They finally irrigated him thinking it'd be a one time thing. They needed to get him cleaned out, as he was full of contrast from his first x-ray and they couldn't do subsequent x-rays to look into why he wasn't having bowel movements until it was gone. In the meantime, they took a biopsy from his colon to check for nerve cells. That biopsy was negative- giving us an answer finally: a disgnosis of hirschprungs disease. This meant a portion of his colon didn't have nerve cells that allow you to "push" a bowel movement. Mase had surgery yesterday. A pathologist was present and they took biopsy after biopsy to check for netve cells trying to locate where they began. After an agonizing 8+ hours of surgery and 16 biopsies later, it was discovered Mase has no nerve cells in his colon/ lower intestine, nor most of his small intestine. His nerve cells begin in his jujunum intestine: leaving him with 40cm of healthy intestine, or about 20% of his total bowels. This was devastating news. The amount of intestine he has is not enough to absorb enough nutrients to allow him to grow properly. He'll need permanent IV to supplement him to allow growth, and a feeding tube directly into his stomach for constant drip feedings to slow that digestion down and allow as much nutrient absorption as possible. He has not, and will not be allowed to eat orally for a long time, if ever. This mama is absolutely devastated and heartbroken :'-( i have waited with abated breath since his birth to nurse him and have that special bond. This is one of the hardest parts for me. He's very hungry and wants to eat badly :-'( on top of all this; Mase has severe apnea. When he gets in a deep sleep he stops breathing or breathes very shallow and his oxygen levels drop. They will be doing genetic testing to look for a condition sometimes associated with Hirschprungs to explain why he has the apnea. We still have a lot of unanswered questions and we're processing a lot of information. I'm posting this to ask you to please pray that the biopsies taken during surgery somehow; by the grace of our loving God, cone back from final pathology with a slightly better disgnosis: that there are nerve cells lower than initially thought that would allow him better nutrient absorption and be allowed to eat orally. Although we face a long and difficult journey, we trust in the Lord for He is good. We will walk whatever path He has chosen for us. Thank you all for your prayers, love and support!
Organizer and beneficiary
Kayla Hawke
Organizer
Buffalo, MN
Kayleigh Wuollet
Beneficiary