MEDICAL TREATMENT FOR TYLER NEWLIN

This is Tyler Newlin who is one of the most precious souls I've ever met. Tyler, was diagnosed with a disease that has kept him at a toddler level since the age of two. He doesn't speak but just minutes around him and you will know exactly what he thinks about you. Tyler requires weekly physical therapy so that he can continue to walk and full time care which doesn't allow his mother to work. A few months ago we were told that the disease Tyler was diagnosed with at the age of two is NOT the disease he is suffering from and Tyler is now 16. Tyler has now been diagnosed with an extremely rare disease . There is only one doctor in the world that knows anything about this disease and she happens to be the doctor that discovered and named the disease. Tyler's local doctors want him to be evaluated by this doctor since they arent aware of how to treat the disease and how the disease will effect Tyler in the future. However, his insurance will not pay for him to go to another state to be evaluated. Its terrible that something might can be done to prolong this young mans life but a insurance company won't allow the treatment. Please help this precious boy get the treatment he needs and deserves. I assure you anything you can give will be greatly appreciated.
Thank you,
Concerned Aunt