Help Support AJ (ultra short bowel syndrome)

Hi, my name is Laura and I’m fundraising on behalf of my friends beautiful 3 year old daughter AJ who is battling an incurable medical condition which causes her to continuously be hospitalised and need medical care.

They juggle hospital life whilst still caring for their eldest son Amias and this comes with a lot of financial and mental stress and I’m wanting to help provide funds to take some of the financial stress away so that her parents Kaysha and Mickey can spend as much precious time with her as she is a miracle to of lived to 3 but unfortunately due to her condition she most likely won’t make it past 5 years so I want them to spend this time making magical memories.

3 years ago Alaiah-Jae was born & well other than needing a small surgery so she would be able to eat, Their family were told that they would be home within a week after her surgery, however that wasn't the case for AJ & her family. Aj got extremely sick a few days out from going home & the medical staff advised that she either had an infection or a slight leak in her surgery after waiting nearly 10 hours Aj was rushed into an 8 hour long surgery. She was neglected and misdiagnosed & ended up have her entire bowel twist on itself and block all blood flow to her bowel. Mum & dad were told that she wouldn't live through the next couple of days, however they were willing to try a blood thinning medication to see if that would improve the blood flow in the bowel this however didn't work.

Aj was now diagnosed with an extremely rare condition called Ultra Short Bowel Syndrome, she had to go back into surgery & have the dead bowel removed in which she was left with 7cm ( a normal baby have 150cm if not a little more).

Kaysha & Mikey were both faced with letting their beautiful girl pass away or keep fighting and going through numerous surgeries for a chance that she could live a life in hospital, & that is what they did. They came past many many doctors & surgeons telling them that their best option would be to let her go peacefully as she wouldn't live past the age of 3.

Bringing you forward to todays date Aj has had 35 surgeries with the potential of needing more , She spent the 1st year of her life living in hospital with not knowing she would ever come out & even when she got discharged she was in every month for long lengths of time. She has had countless infections which have led to sepsis on multiple occasions & is still fighting everyday to be here with us all.

Unfortunately due to Kaysha and Michael being NZ citizens they have no access to government funding including NDIS and charities that would've helped them immensely. They both have to work to maintain living & taking care of big brother Amias (5 years old) & AJ with all her medical expenses, this has resulted in having to leave AJ in hospital with nurses and staff so they could keep supporting their household & bills. Aj has made it to 3 years old and knows that she has 2 homes being hospital and their family home to this day she still has multiple medical appointments every week and has hospital stays each month & sometimes she can stay for weeks months & even the possibility of longer with infections or other medical problems going on. Everyday is a blessing to have AJ she brings so much love, joy, light and sassiness into each and everyone she meets.