Help me to walk! I am in unbearable pain

Hello I'm Solveigh,

I have a long history of illness and unnecessary medical treatments and tests that now caused the worst nightmare of my life. I got sick 8 years ago because of a benign tumor. The consequential damage requires further treatments, which lead to small fiber disease through unnecessary medication and antibiotics. This pain, which was constantly too bad, accompanied me every day and it took 7 years until I could reasonably live with it and work a little again.

I started an Etsy shop during the pandemic. I wasn't 100% but happy. However, I should still do an unnecessary lumbar puncture to clarify consequences of the small fiber disease, which then has fully destroyed my life. I am ill since October 2021. For 5 months I had strong liquor hypotension, which unfortunately could not be treated with a blood patch because my back pain was getting worse and worse. I didn't know anything about arachnoiditis and that one has to act very quickly prevent äing more damage. However, now, I cannot walk no more than 10 minutes without severe lumbar pain. I also have very severe pain when lying down, which turns into a nightmare for me every day. The doctors are not able to find any leaks or signs of inflammation and do not believe in an arachnoiditis because its not in any medical book.

I now need your help and support to pay experts and treatments outside my country for this unknown disease.

I‘m not sure if I ill die like others with that disease but i‘m just lying 24/7 with incredible pain and no treatment yet. My dream is to walk for more than 10 minutes. For this, I need advise and treatment from experienced doctors in the UK and US and need support to travel, which is expensive and difficult as I cannot stand or sit for a few minutes. My family has no financial background and my husband can only pay the daily bills.

Thank you all for your support and please never do a lumbar puncture unless it's an emergency ❤️