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Help Grace get the rehab she needs.

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Grace is a 12 year old who suffers from Juvenile Rheumatoid Arthritis, Hypogammaglobulinemia, Ehlers Danlos Syndrome, Dysautonomia, and other chronic debilitating painful diseases. She has recently been disgnosed with AMPS(Amplified Musculoskeletol Pain Syndrome) and significant muscle atrophy. She has lost all reflexes in her lower extremities and is in desperate need of rehablitation to regain complete function and prevent further disability. She was referred to the PPRC at Boston Children's Hospital and Nemours Childrens Hospital in Orlando. The program at Nemours Children's Hospital could get her in the soonest. She will be admited to the program and begin treatment on August 10th 2015. This is a 30 day, 5 day a week intensive rehab program that requires her family to relocate to another city for a month. The cost of these programs average $2700.00 a day. The families portion is 20%. Her mom will have to take unpaid FMLA  in order for them to relocate for a month to care for Grace. This is a huge financial burden for a single mom. Please consider donating to help offset the financial burden so Grace can get the treatment she so desperately needs, and the family's bills can be paid so her mom can focus on her care.
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Donations 

  • Gregory Scharfstein
    • $75
    • 9 yrs
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Organizer

DeeDee Bates
Organizer
Bradenton, FL

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