5 month old Karvion In childrens hospital PICU

Hi, I'm Karri's mother, Breanna. My five month old son has been at children's hospital in the PICU since May 3rd, 2023. This has been the most difficult thing life has ever thrown at us. Karri's dad and I recently got married on April 19th and had our reception on April 29th. Just 3 days after, this horrific incident happened due to co-sleeping. Every parent's worst nightmare happened to us. Everyone thinks/says there's no way something like this could happen to them. We thought so too. We have a 4year old daughter and a 1 year old daughter. So we swore we knew what we were doing. At 5 AM Karvion woke up crying unexpectedly; usually he sleeps till 8 am, and I was exhausted. I took him out of his crib and laid him between us, nudging my husband to feed him for me as I needed a few minutes. I don't even remember falling back asleep. Expecting my husband just to jump up was the most selfish thing I could have done. Like he wasn't just as exhausted as I was, I'm the one who always does morning feeds, always.

▪︎My life was about to change forever in the worst way▪︎

The next thing I know, My husband wakes me up, screaming that Karvion is blue and not breathing. All hell broke loose from there on out. Panicking and screaming, I could visibly see him turning bluer. Im thinking he's congested, and his nose needs to be sucked. I'm literally jumping up and down, slinging the dresser drawers out on the floor. I can't find the nose Freida, and I could feel every second tick by. So I just called 911. My brother-in-law was there and screamed somebody just suck his nose with their mouth. My husband's panicking, saying do I suck or blow. I instantly yelled, "just do one" My husband blew in his mouth and got him gurgling. I'm trying to talk to the 911 lady, the call was through wifi (I couldnt find my phone) and it kept dropping when id get to our bedroom where they were. The lady could barely understand me. I couldn't calm down, she got really stern and told me they couldn't help him until they knew exactly where we were. She told me to take a deep breath and to yell my address as loud as I could, and she went straight into telling me I needed to lay him flat, I'd walk closer to the doorway so my husband could hear her on the phone and the damn call dropped, but she instantly got us reconnected. Thank goodness The EMT showed up. Karri and my husband went straight to ER in an ambulance. The whole thing felt like it lasted hours, but in reality, was only minuets from the 911 call to them showing up and leaving. I'm showing up to the hospital where they are, not knowing what to expect. But my mind always is at the worst with anything. All I know is my baby needed help. Everything was black around me. All I could see or hear were nurses and doctors surrounding my little baby. My only son. I was sobbing nonstop the whole damn time, so I stood in the hallway. I didn't want my son to hear me cry like that.

They came to a conclusion that he was having significant seizures due to loss of oxygen. And needed to go to children right away. My heart shattered. Literally people. I felt sick. Dizzy. Confused. I just wanted to rewind back to 5am, I should have just left him in his crib. It would have been okay for him to cry for a second, for me to be able to wake up fully and attend to my baby. Why didn't I just leave him in his crib, and give him the Pacifier for a second. One second would have changed the whole outcome.

Since May 3rd, my son has been having continuous seizures, and tested positive for covid-19 and rhinovirus. He has EEG wires glued to his head to monitor seizure activity; he had an iv in both arms; they now removed them and put a central line in his neck. I guess the vein is more reliable there. Then had got a feeding tube and breathing tube as well. The first week my son hadn't eaten anything due to medications but was on iv fluids to regulate his blood sugars and to stay hydrated. They then had to intubate him (breathing tube) as a precautionary measure(day3or4). Some of the side effects of the medication could cause him to stop breathing on his own. A few days after that they inserted the feeding tube and started to fill his lil belly. I was so worried about him not eating. It was always the first thing id ask when id call. So when I went to see him after they put it in I was so relieved.

It's now been 17 days. 17 days since i got to hold my baby. 17 days that I haven't Hurd my baby cry. 17 days since I got to feel his breath on my chest when he'd fall asleep after getting burped.

My husband lost his job 2 days after this, he had just started and it was line work so they needed the spot filled. I spent anything we did have saved on the wedding. There's no way anybody could be prepared for something like this to happen.

We live in the country in manitowoc County and my son is at children's in milwaukee. 77 miles I have to travel to and from just to be able to see and support my son.

During the first week my vehicle had broke down when my husband was coming back home from seeing karvion. As soon as my husband called and told me what happen I lost it all over again. I felt like someone was sabotaging me from seeing my baby, I stayed home with a 102 fever that day. the nurses suggested I wait 24hrs to come see him and that was already hard.

God blessed me when I was told from my kids pediatrician that I could use her sons car! I've now had it for almost 2 weeks while trying to gather the money for the car parts for the van. But gas is a huge factor as well as our 2 daughters. Since he's covid and ryno positive the girls can't be with us to see him. It was really hard being there by myself so we had to balance where they where and for how long constantly traveling. CONSTANTLY. The woman I'm barrowing the vehicle from is so sweet and is being really generous but I want to give her car back. I feel almost like I'm taking advantage but I have nothing else and wheels is a must where the hospital is located.

There is another fundraiser but it's not reaching people and I can't edit or update it. We have literally like penny's left. I don't know how I'm going to get this part it's not cheap plus labor to install it. Plus funds we need just to simply live on. I have lots of food stored but things like diapers and wipes. Things karvion might need when he does come home is a real stresser. More GAS. the hospital is super awesome and was and does help with gas cards but they can only give so many. I hate that we're having to ask for help. When I was a little girl and I envisioned how life was going to be after marriage, you think things will be perfect and be lined up for an easy happy life.

I must have watched to many fairy tails because reality hurts. Were being tested in the worst way. I'm so thankful my Karri is here with us. God has already blessed us just by him still being here. The doctors broke my heart the other day. "I'm sorry to say but he might not live a normal life, like the girls are" I melted. My husband had to hold me up. He might have lost his sight as well and thats the hardest thing for me to accept. There's significant damage to the bridges that connect both sides if the brain so he might not be able to walk. They keep trying to reassure me tho that "baby's are miracles and they surprise us everyday" but then also tell me "brain tissue isn't like a cut on the arm. Brain cells don't recover they turn hard like scar tissue"

I'm sorry there are a couple curse words but this is from the heart man. This is my youngest baby. My only son. He's only 5 months old.

The fucking blanket. I've slept with him so many times before. I know it's terrible but I was attached to him. He was a preemie and was always congested so I used to prop him up by my head on my side. But then id never really fall asleep. So I guess that's when my sleep deprivation started. From that day on I set my self up. I miss my son I just need to make sure we're there supporting him

Please even if you can't donate anything just pray for my son. Pray for him. Help us pray. I've been leaning on the power of prayer this whole time. And i think it's the only thing that's keeping me together. Please pray for Karvion. Pray his biggest sister finds strength until she can see him. It's really hurting her. And it's hard to fully explain to her to were she doesn't freak out because she's a smart 4. She over thinks things. I don't want her to worry. I'm trying to keep this as normal as possible. It's so hard not to cry in front of them. She just asked me lastnight why I cry in the shower and I froze up. I didn't know she could hear me. And that hurts me. My 1 year old knows something is up but she's such a good distraction. There will be updates as often as I can. Lots of pictures to be posted.

Thank you for taking some time to read my story. Like I said all I'm truly seeking is a prayer for karvion.

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