5 year old Jensen’s Medical Care for Tuberous sclerosis

Dear friends, family, and any other caring hearts out there. I’m reaching out with a heavy heart today. My good friend’s son is currently in the hospital after going in for a dental procedure and having very high blood pressures. They have found multiple lesions in both of his kidneys and found a lesion in his brain after doing a brain MRI. The expenses for ongoing tests and treatment are a very unexpected burden for their family. I’ve created a fundraiser to help ease the burden of the medical, travel, and housing costs. They are currently 2 hours from home where the nearest pediatric hospital and pediatric specialists are located.

Any amount you can contribute or even a simple share of Jensen’s story would mean more to me and their family than words can express. Your support not only helps them financially but provides the emotional lift to help this little family stay strong.

I’ve started with a goal of $30,000 but costs are likely to be much more than that. Dad has work insurance for the whole family, but the costs left after insurance pays will be high. All funds will go directly from gofundme to the family.

3/18/25 update: Jensen is still in the hospital, but they are confident he’ll be ready to go home soon. Doctor’s have diagnosed him with a rare disease called Tuberous sclerosis complex. It is a multisystem genetic disease that causes benign (noncancerous) tumors. The tumors can grow on the brain and on other organs such as the kidneys, heart, eyes, lungs, and skin. TSC disease usually affects the central nervous system and results in a combination of symptoms including seizures, developmental delay, behavioral issues, skin abnormalities, and kidney disease.

There is no cure for TSC. He will be on lifelong blood pressure meds and specialty meds. There will be ongoing visits with multiple pediatric specialists including nephrology, genetics, neurology, and hematology/oncology - and potentially others depending on the progression of his disease. He will need speech therapy, occupational therapy, and special education help in school. And at a minimum they will need to travel to Seattle (about 6 hours from home) 1-2 times a year to go to the TSC specialist at Seattle Children’s.