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Tay will TRIUMPH

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Hi,

My name is Kristen.

I have started this fund for a very special little girl Tayjarnah. A few years ago, Tay woke up with a sore knee and was having trouble walking. After a lot of testing she was diagnosed with Leukemia. She was back and forth between Townsville and Brisbane for testing, preparing for treatment. Just before her treatment began we recieved some wonderful news, her cancer was dormant (FOR NOW). it was never a matter of IF it would come back, but WHEN...... Tayjarnah has had regular testing for the past few years, monitoring her progress. Recently we have recieved more tough news......

The last few months have been a bit tough for the wonderful Tayjarnah, June saw her flown to brisbane and as a result she was diagnosed with a genetic condition known as Fanconi Anemia (Please see below for a description of what Fanconi Anemia is).

Since then things have gone down hill and on Monday(10/8/15) we were given the devestating news that she will need to have a Bone Marrow Transplant in the coming 2 months. The Fanconi adds alot of complications to the transplant but we all know Tay is built tough with a strong heart and strong mind she will fight. Tyrone (her dad) will be her donor and if his stubbornness, willingness to put up a fight and never stay down spirit gets passed on she will beat what ever is thrown at her.

Tyrone and Katie do everything they can for Tay, and have never asked for any help, this is my way of giving them the help they deserve. Our first goal is to give Tay the best family holiday on the Gold Coast visiting all the theme parks before she goes into hospital. Once she is there she is in isolation, and Tyrone is unable to work for 3 months. As you can imagine, being away from family here will be extremely hard. Tayjarnah will need to be in Brisbane for at least 12 months.

I have had the pleasure of knowing Tayjarnah since she was a little toddler at my kindy. Prior to that I worked with her mummy Katie as well. I have a lot of faith that Tay will fight this with everything that she's got. She deserves to have happiness and grand adventures. Please help me to raise the funds to help some of her dreams come true.

Fanconi anemia (fan-KO-nee uh-NEE-me-uh), or FA,
is a rare, inherited blood disorder that leads to bone marrow failure. The disorder also is called Fanconi’s anemia.

FA prevents your bone marrow from making enough new blood cells for your body to work normally. FA also can cause your bone marrow to make many faulty blood cells. This can lead to serious health problems, such as leukemia (a type of blood cancer).

Although FA is a blood disorder, it also can affect many of your body's organs, tissues, and systems. Children who inherit FA are at higher risk of being born with birth defects. FA also increases the risk of some cancers and other serious health problems.

Thanks in anticipation for your support,

Kristen
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Donations 

  • Tamika Jia
    • $10
    • 9 yrs
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Organizer

Kristen Leedie
Organizer
Hervey Range, QLD

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