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Help Her Heal

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Our beautiful daughter Kaci has this year at the age of 11 experienced the most shocking reversals in language, social skills and motor functions. She has developed severe sensory processing problems & has become doubly incontinent. Kaci previously led a perfectly healthy and happy life up until this horrific regression struck her. She hit all milestones when she should of (some of them earlier than expected) she excelled throughout her primary school years & loved sports in particular. We were so lucky to have been blessed with such a happy, funny, bright, beautiful girl. I feel as though she has been taken away from us and we as parents, her little brother and sister and all of her family and friends miss her terribly. We are being let down by the people that are supposed to be helping her. Kaci's life has out of the blue been ripped away from her and we are determined to get her the help she so desperately needs. For over 6 months we have had numerous tests and investigations carried out but we are no closer now to having a diagnosis or treatment than we were when we started. We have now been told that it could take months for her to be admitted into Great Ormond Street because of waiting lists. We have watched enough of our daughter melt away already. We don't have months to wait! We have also been told that to put Kaci in an appropriate private unit for tests and treatment it could cost anything up to 250,000. We are going to try and raise as much as we can to go private. Please help us help her if you can!

Organizer

Emily Smith
Organizer

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