Last chance treatment
Donation protected
In February this year, my partner Sarah, was diagnosed with Primary Central Nervous System Lymphoma. This is a very rare brain tumor. Since her diagnosis she has received one round of Chemotherapy and 5 sessions of Radiotherapy in an effort to stop the seizures she was experiencing several times a day.
Unfortunately, after her first round of chemotherapy she developed grade 4 sepsis. This left her fighting for her life. Consequently, Sarah's chemotherapy treatment was halted because the Sepsis had created a sizable open wound in her arm that took several months to heal.
Sarah needed a reassessment following her recovery from Sepsis before she could continue with the chemotherapy treatment. This involved a full MRI body scan. This took place in in June. The results were devastating.
The scan showed multiple tumors in Sarah's left lung with one large tumor located in the left lung. Multiple tumors showed up in each of her kidneys alongside her brain tumor which had increased in size too.
Subsequently Sarah was told that although she would receive ‘aggressive treatment’ to combat the spread of her cancer, it was also explained to her that this approach was due to being 33 years old rather than because it would provide a cure.
This prognosis prompted Sarah's immediate move back to the UK because of concerns regarding her ability to travel if she was to become too sick.
Since being under the care of the NHS Sarah has had her PET and MRI Scans repeated. At the most recent meeting with the Oncologist it was explained to Sarah that she had developed another tumor on her Pancreas and that she is terminally ill and as a result no further treatment is available.
Sarah has appealed this decision as she has researched IMMUNOTHERAPY treatment. This is a very new treatment for Cancer and therefore extremely expensive. The NHS and the Social Security in Spain will not provide this treatment as it is not currently approved for Sarah's specific type of Cancer. This is because it is a very rare form of Cancer and as such the funding for research trials would not be cost effective.
However, Sarah can receive this treatment if she funds this herself which could possibly provide Sarah with a CURE. This is her next step, but Sarah needs to access this treatment immediately before her physical strength declines further.
To have this treatment abroad each injection would cost 3000 Euros. These injections would be given at 3 weekly intervals over a period of 2 years or more, costing in all 104,000 Euros.
Sarah does not want to die. But Immunotherapy is her only option at this stage and she can’t do it without your help.
Thank you for taking time to read her story.
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Organizer
Laura Clarke
Organizer