Olivers Twist.
Donation protected
Welcome to Oliver’s go fund me page.
At around 4 ½ months old, Oliver was increasingly difficult to feed and very irritable, on the 13th March 2019 he completely refused a bottle. After 3 weeks at our local hospital and 3 ½ weeks at St Georges Hospital and many tests, scans, blood tests and consultations, on the 24th May 2019 at exactly 7 months old, Oliver was diagnosed with Infantile Krabbes disease.
Krabbes disease is a terminal life limiting neurometabolic condition due to genetic defects.
Oliver’s life expectancy is less than 2 years old.
Oliver has relied on and will continue to rely on organisations to help him with his symptoms and wellbeing going forward, organisations that heavily rely on donations and grants to keep them run:
• Shooting Star Children Hospice - https://www.shootingstar.org.uk/
• Evelina Children’s Hospital - https://www.evelinalondon.nhs.uk/
• The White Lodge - https://www.whitelodgecentre.co.uk/
•momentum children’s charity
www.moment-um.org
As a family, we know that every day, hour and minute will be precious with our dear little boy, Oliver. We have decided to draw up a bucket list creating lasting memories, that we would like to achieve as a family in the short time we have left.
We would like your help to raise money to support us in completing Oliver’s bucket list, as well as raising money for the organisations that have already been a huge help to us as a family and most importantly Oliver’s wellbeing now and going forward.
You can follow Oliver's story on Instagram @Olivers_twist24
THANK YOU.
Oliver and Family.
xxxx
At around 4 ½ months old, Oliver was increasingly difficult to feed and very irritable, on the 13th March 2019 he completely refused a bottle. After 3 weeks at our local hospital and 3 ½ weeks at St Georges Hospital and many tests, scans, blood tests and consultations, on the 24th May 2019 at exactly 7 months old, Oliver was diagnosed with Infantile Krabbes disease.
Krabbes disease is a terminal life limiting neurometabolic condition due to genetic defects.
Oliver’s life expectancy is less than 2 years old.
Oliver has relied on and will continue to rely on organisations to help him with his symptoms and wellbeing going forward, organisations that heavily rely on donations and grants to keep them run:
• Shooting Star Children Hospice - https://www.shootingstar.org.uk/
• Evelina Children’s Hospital - https://www.evelinalondon.nhs.uk/
• The White Lodge - https://www.whitelodgecentre.co.uk/
•momentum children’s charity
www.moment-um.org
As a family, we know that every day, hour and minute will be precious with our dear little boy, Oliver. We have decided to draw up a bucket list creating lasting memories, that we would like to achieve as a family in the short time we have left.
We would like your help to raise money to support us in completing Oliver’s bucket list, as well as raising money for the organisations that have already been a huge help to us as a family and most importantly Oliver’s wellbeing now and going forward.
You can follow Oliver's story on Instagram @Olivers_twist24
THANK YOU.
Oliver and Family.
xxxx
Organizer
Alan Pogson
Organizer