Sweet Baby James Parisi
Donation protected
A message from Anthony Parisi;
At 5 months old, Molly and I learned that our son James was diagnosed with a rare form of Congenital muscular dystrophy - Lama2 related, or Merosin deficient MD to be specific. Here is a short video that does a good job of illustrating the impact it has on James and how it affects the family. I was really taken with how strong willed this little girl is, and as I watched and continue to think about her, she really reminds me a lot of James. It’s worth a quick watch if you have time.
While at first the news of James’ condition came as a devastating shock, we’ve since had time to process and put it all into perspective, and at the end of the day the only path forward for Molly, James and Me is one built on trust, support, positivity and strength. There just isn’t any room for sadness and fear as that would only be a disservice to James. So we move forward and give James everything he needs to be strong and happy. This is not without its own financial burden – we need your help!
I realize that there are a lot of really great causes out there that deserve your time and generosity, but I humbly and gratefully ask that you consider directing some that towards helping me and my Sweet Baby James.
Thank you everyone.
At 5 months old, Molly and I learned that our son James was diagnosed with a rare form of Congenital muscular dystrophy - Lama2 related, or Merosin deficient MD to be specific. Here is a short video that does a good job of illustrating the impact it has on James and how it affects the family. I was really taken with how strong willed this little girl is, and as I watched and continue to think about her, she really reminds me a lot of James. It’s worth a quick watch if you have time.
While at first the news of James’ condition came as a devastating shock, we’ve since had time to process and put it all into perspective, and at the end of the day the only path forward for Molly, James and Me is one built on trust, support, positivity and strength. There just isn’t any room for sadness and fear as that would only be a disservice to James. So we move forward and give James everything he needs to be strong and happy. This is not without its own financial burden – we need your help!
I realize that there are a lot of really great causes out there that deserve your time and generosity, but I humbly and gratefully ask that you consider directing some that towards helping me and my Sweet Baby James.
Thank you everyone.
Organizer and beneficiary
Hannah Illig
Organizer
Buffalo, NY
Molly Parisi
Beneficiary