Willow-grace

Hi, my name is jo, I'm fundraising for my beautiful granddaughter Willow-grace, who sadly lost the battle to DKH which is nonketonic hyperglycemia.

Nonketotic hyperglycinemia is a rare, genetic, inborn error of glycine metabolism. Due to a mutation in the glycine cleavage enzyme system, the patient cannot break down glycine, resulting in its accumulation throughout the body. The buildup of glycine primarily occurs within the spinal cord and brain; thus, this condition's initial clinical manifestations and long-term sequelae are often neurological.

Willow-grace was only 12 days old when she sadly passed away. I'm hoping everyone could help Jayden and Sophie give their beautiful only daughter the send off she really deserves. As we all can imagine this is going to be one of the hardest things they will have to do and I want to be able to help them I any which way I can. I'm not asking for alot as I know times are hard but every penny will count. Let's show jayden and Sophie that we are behind them every step of the way and they aren't on their own. Thank you all in advance, it's much appreciated xxx

Fly high in paradise princess Willow-grace