Legs For Louie

AUCTION

Saturday 18th May 7pm

THEN:

Wear Pink and join us on Sunday the 19th May at 8:30am.

We will be leaving from Ripple Coffee shop in Macksville, riding to Nambucca V wall and returning to Macksville Hotel. There we will have a well earned rest and recover, aswell as prizes, facepainting and lots of fun for the littles!

Lou is booked for his open heart surgery on the 29th of May to repair his Supravalvular Aortic Stenosis. This will mean even more blood tests, ECGs, MRIs, CT scans as well as a lengthy stay in Sydney. Being in the centre of this right now has made us even more aware of the mental and financial stress this can put on families with littles just like our Lou.

Our goal is to raise awareness and funds to help all of those with Williams Syndrome.

Acceptance and inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams. We will be riding with Lou to show him everyone that is behind him and beside him through all that life throws his way!

A Little about Louie & Williams Syndrome

If you have been lucky enough to have met Louie you will know what a special little boy he is! Lou was born with Williams Syndrome, a disability caused by the spontaneous deletion of up to 28 genes within chromosome 7.

This deletion is responsible for developmental delays, mild to moderate intellectual disability, learning disorders; hyperacusis (extreme sensitivity to sound), Dental problems - such as teeth that are widely spaced, weight and growth problems, hypercalcaemia (higher than normal levels of calcium circulating in the blood); kidney problems – including variations in shape and function, muscle and joint problems – including poor muscle tone, weak muscles, overly loose joints, muscle contractures and poor physical coordination.

AS WELL AS ...

An affinity for music, highly sociable personality and a wonderful zest for life! If you meet someone with Williams you will have a best friend for life!

One of the missing genes is the gene that produces elastin. This is a protein that allows blood vessels and other tissues in the body to stretch. This causes cardiovascular problems in 77-79% of those with Williams. Common heart problems include narrowed aorta (aortic stenosis) and narrowed pulmonary artery (pulmonary stenosis).

All funds raised by Legs for Louie will go directly to assisting those with Williams Syndrome. Aiding with ongoing medical appointments/travel for appointments/ special needs camps and therapies not covered by NDIS,aswell as family bills to assist with recover time.

Thankyou for your acceptance & support

Brooke & Mitch

aka Louie's Mumma & Dad