Jaycee’s Journey

As most of you know, Jaycee was born with a leak on the left side of her heart and has suffered with Tachycardia since birth. She has dealt with it like a true champ, (while momma has had a few panic spells.)

Three years ago she was diagnosed with Amplified Muscluoskeletal Pain Syndrome. It affects the muscles within the body, and her body never stops sending pain signals to the brain. It appears the AMP is now affecting her heart. She has a wonderful Cardiologist here at home who has taken excellent care of her for her 16 years. But back in August her symptoms began to worsen. She has been in and out of halter monitors since then, had a stress test, and some genetic testing done. After all the testing it appears that the bottom ventricles of her heart are not working like they should. So, her cardiologist referred us to a Cardiologist who specializes in Electrophysiology at the UVA Medical Center in Charlottesville, VA.

She had her first appointment there on January 22nd, and we will now be returning on February 8th, for a procedure on the 9th.

The doctor will be doing what they call an EP Eppi Infusion, where they will give her high doses of Eppi to make her heart rate increase so they can see exactly what the heart is doing during a tachycardia episode. If the problem is located; they will repair the issue while we are there. According to paperwork and discussions we have had she will have to stay overnight in the hospital following her procedure. If everything goes well she will be discharged the following day, unless a more invasive procedure is needed to repair the heart.

Several people made Jaycee some care packages and gave money for the previous trip and we GREATLY APPRECIATE all of it. We could never thank you all enough. This has been set up to help cover the cost of travel and meals for this upcoming procedure. We appreciate everyone for everything you have done and do for our girl.