Freedom for Ciarra
Donation protected
Ciarra (Cece) is an 11yr old silly, sarcastic, fun loving, smart, charasmatic, beautiful girl that needs your help. When Ciarra was 16 months old she was diagnosed with Spinal Muscular Atrophy type 2 (SMA2), which falls under the umbrella of Muscular Dystrophy.
SMA is a genetic disease characterized by the the progressive loss of lower motor neurons in the spinal cord, resulting in muscle weakness and atrophy.
Ciarra and her familly are desperately in need of a wheelchair van. They currently have no transportation.
Ciarra has 6 doctors that she has to see at least once a year if not more. The Family usually has to place Ciarra in a red convaid stroller and walk her to her appointments. There are times where walking to appointments can be tricky because extreme temperatures both warm and cold affect her breathing. Keeping breathing problems to an absolute minimum is essential in SMA patients. Respiratory issues are the number one killer in SMA patients. They also encounter busy streets, no handicap accessible sidewalks making it dangerous to walk her in the street, sidewalks where the pavement is missing or is lifting making it hard to push her over without causing her pain, and lets be honest it gets very tiring pushing 80 pounds up the steep hills of Providence. Ciarras sisters and parents will alternate pushing her. The following pictures are from a walk to the dentist. First picture is showing the sidewalk with no handicap access. The second picture is a crack in the sidewalk that they have to get her over without causing her pain. The third picture is showing her sister pushing her to give Mom time to catch her breath.
Ciarra is about to start middle school this year, without transportation she will be unable to join any afternoon clubs such as Drama which is someting she has been wanting to do for 2 yrs now. Her SMA does not affect her cognitive development and she very much wants to be part of gatherings and events. Having no transportation, Ciarra and her family have missed out on birthday parties, going away and welcome home parties, family cookouts, other fundraisers for friends and even funerals for family members.
They aren't asking for a miracle (though not opposed to it happening) but if you could find it in your heart to donate, share this on FB or any other social media, or send thoughts and prayers everything and anything would be welcome and very much appreciated. I'm an outsider that sees the struggle and I just want to try and do a good deed for a very deserving family. Thank you in advance for taking the time to read.
Love to all
Sincerely
Anonymous
(not Ciarra)
P.S. In order to remain anonymous the email address is Moms...shhhhh
SMA is a genetic disease characterized by the the progressive loss of lower motor neurons in the spinal cord, resulting in muscle weakness and atrophy.
Ciarra and her familly are desperately in need of a wheelchair van. They currently have no transportation.
Ciarra has 6 doctors that she has to see at least once a year if not more. The Family usually has to place Ciarra in a red convaid stroller and walk her to her appointments. There are times where walking to appointments can be tricky because extreme temperatures both warm and cold affect her breathing. Keeping breathing problems to an absolute minimum is essential in SMA patients. Respiratory issues are the number one killer in SMA patients. They also encounter busy streets, no handicap accessible sidewalks making it dangerous to walk her in the street, sidewalks where the pavement is missing or is lifting making it hard to push her over without causing her pain, and lets be honest it gets very tiring pushing 80 pounds up the steep hills of Providence. Ciarras sisters and parents will alternate pushing her. The following pictures are from a walk to the dentist. First picture is showing the sidewalk with no handicap access. The second picture is a crack in the sidewalk that they have to get her over without causing her pain. The third picture is showing her sister pushing her to give Mom time to catch her breath.
Ciarra is about to start middle school this year, without transportation she will be unable to join any afternoon clubs such as Drama which is someting she has been wanting to do for 2 yrs now. Her SMA does not affect her cognitive development and she very much wants to be part of gatherings and events. Having no transportation, Ciarra and her family have missed out on birthday parties, going away and welcome home parties, family cookouts, other fundraisers for friends and even funerals for family members.
They aren't asking for a miracle (though not opposed to it happening) but if you could find it in your heart to donate, share this on FB or any other social media, or send thoughts and prayers everything and anything would be welcome and very much appreciated. I'm an outsider that sees the struggle and I just want to try and do a good deed for a very deserving family. Thank you in advance for taking the time to read.
Love to all
Sincerely
Anonymous
(not Ciarra) P.S. In order to remain anonymous the email address is Moms...shhhhh
Organizer and beneficiary
Lacie Messier
Organizer
Providence, RI
Pauline Weider
Beneficiary