Help Kids Thrive Despite ACC Challenges

Liam was born with a rare brain disorder called Agenesis of the Corpus Callosum (ACC).

The corpus callosum connects the left and right sides of the brain. It’s how the brain communicates with each other. ACC affects each child differently.

Symptoms of ACC include:

Developmental delays, such as problems with sitting, standing, and walking

Hand-eye coordination issues

Low muscle tone

Feeding and swallowing problems

Unusual head shape and facial features

Hormone level problems

Seizures

Liam has had some struggles since he was born. He started therapies at two days old and still continues some today!

When he was diagnosed with this disorder, the neurologist stated that he may never walk, talk, or eat like he should. He attended an intense feeding therapy at St. Mary’s Children’s Hospital in Bayside, NY, which helped him learn to eat but is still a work in progress. The following therapies have helped Liam, PT, OT and Speech. Liam is on Growth Hormone Therapy because of his Growth Hormone Deficiency and poor weight gain. He takes his injections daily like a pro! He is monitored closely for his height and weight by an amazing team of doctors to which we cannot thank enough for their continued guidance and support.

He now plays ice hockey and roller hockey! He loves the New York Islanders and the New York Yankees! He loves all genres of music. He is very patriotic since he was 2 years old as well as a die-hard Trumpster since then too!

Please help us spread awareness for Agenesis of the Corpus Callosum (ACC).

Please help to raise money for Disorders of the Corpus Callosum to help with research, St. Mary’s Children’s Hospital Intense Feeding Therapy and Liam’s future therapy which are not covered by insurance.