Alaya Wright

A message from Alaya’s mother:

Alaya is 2 years old. She has fought for her life from the moment she was born. Life has not come easy for her. She was born at 30 weeks with a bilateral grade 4 brain bleed, seizures, and many other complications, but she never let that hold her down. Alaya had her first brain surgery at 2 months of life. She’s now 2 years old and has had 16 surgeries. Sadly, that won’t be the last of them. No matter what obstacle Alaya is faced with, she always proves the doctors wrong and comes out on top.

October of 2019 Alaya was transferred to a new hospital when we hit a wall with her care. Alaya recieved many new diagnoses. We added Chiari malformation, Syringomelia, Arachnoiditis and Cerebral Palsy to our long list. Alaya had surgery for her Chiari Malformation at the end of October 2019 and she ended up in a coma and on life support. I was told that my 1 year old daughter wasn’t going to live. However, thanks to God and the fight my daughter put up, she overcame that obstacle after months of fighting. Alaya ended up needing a feeding tube after her coma due to not remembering how to eat. After 4 months in the hospital, we were able to come home.

September 2020 we had a domino effect of brain surgery after brain surgery. I tirelessly advocate for my daughter. I am her voice and I will make sure she’s heard. We a year later hit another wall with her care. Alaya has declined. She can’t hold her head up anymore, she can’t sit up, so on and so forth. Alaya is a very complex case. I am told time and time again by doctors that they have never seen a child with the brain anatomy she has, and as well they’ve never seen a child with the condition her spine is in at such a young age.

I made a decision to change my daughters care. I refuse to give up on my daughter. We are now in a different state at the best hospital in the country. I’m a single mother. I devoted my life to giving Alaya every opportunity to have the best life possible.

I try to do absolutely everything on my own without asking for help. I’ve realized I need help now more than ever to make sure Alaya is able to get the best medical care possible. We are in a different state far away from our family and friends. Many major surgeries are being brought to the table. Right now there’s no end in sight.

Alaya is worthy. Alaya isn’t her diagnoses. Alaya is my hero.

I never put stock into the negative things said about my daughter. Alaya has proved many people wrong and she will continue to do so. I am not naïve. I don’t live in a fairytale world, however I have faith in my child. I have seen her strength & the fight within her. My daughter is a miracle. Our future is unknown. We fight everyday to make our future our own, without limitations set by doctors that aren’t always right. This is  our journey through life and we are happy to share it with you. We ask that you please pray for Alaya. Please help support Alaya through her battle.  Thank you.