Baby Owen's Battle with Cystic Fibrosis

On November 5, 2019 Mellissa Sanderson and Allan Adams brought baby Owen into the world. Unfortunately, as of November 27, 2019 baby Owen has been diagnosed with an incurable and fatal disease known as Cystic Fibrosis.

https://www.cysticfibrosis.ca/ 

This has come as a shock to his parents and family as no precursor signs were there, being a genetic disease. Owen will have to undergo weekly trips to Winnipeg Children's Hospital from his home in Portage la Prairie and numerous additional visits with specialists for the remainder of his life. Allan and Mellissa will be left with very large medical and medication bills, medical appliances and so much more to aide in Owen's continued treatments.


https://www.cff.org/Life-With-CF/Treatments-and-Therapies/Medications/ 

There is no shortage of love at home for Owen, with mom, dad and his two older brothers (Carter 8 and Parker 4 ) by his side. with treatments, therapy and medications Owen will be able to have a prolonged and healthier quality of life.



A quick glimpse at what Allan and Mellissa will have to financial endure per year can look like this:

Okambri (treatment drug) - $311, 000 annually


Chest Therapy Vest - ranging from $15,000 to $20,000 (but will need replacing as Owen grows)

Both of these treatments are rarely covered under personal health benefits something Allan and Mellissa do not have at the moment. 

https://www.cysticfibrosis.ca/our-programs/advocacy/access-to-medicines