Cookies4Sophie: funding research & hope for Sophie
Tax deductible
Order your cookies today!!!!
Cookie Pick-up and Pop-up:
When: Tuesday, Mar 18
Time: 4:30 - 6 PM
Where: in front of Santo next to Ideal Market
1265 Alpine Ave, Boulder, CO 80304
Hope to see you there!!!
With hope, butter, and love,
Dana
Hi, I’m Dana. I’m 14 years old, and I’m the founder of Cookies4Cures, a nonprofit that raises money for research into rare pediatric diseases. I want to introduce you to my friend, Sophie. Sophie is six years old and lives in Boulder.
^This is my friend, Sophie
Sophie has a really rare and really scary disease. It’s called MCTO. It stands for Multicentric Carpotarsal Osteolysis, which means it’s a problem with her bones. In a healthy person, your bones are alive and the cells need to replace themselves to keep your bones strong. Because of a genetic mutation, Sophie’s bones can’t do this. And there just isn’t a not-scary way to describe this — Sophie’s bones are going to dissolve, and it’s already started.
^These are Sophie’s hands. The bones in her hands have started to dissolve because of MCTO.
So Sophie’s mom and dad are funding research to find a cure and we are going to help! We need to raise a lot of money really fast because the faster we find a cure, the better Sophie’s life will be. Right now, she can still do lots of things like walk and play. I don’t want her to lose that.
Even though this disease is super rare (only 30 people have it!), other diseases share a similar pathway. The research that helps Sophie will hopefully help a lot of other people, too.
Cookies4Sophie is going to raise $50,000 to help fund research to save Sophie’s bones. Our plan is to bake A LOT of cookies. Cookies4Cures has already baked 22,000 cookies and raised over $350,000 for other rare pediatric diseases, so I know we can do this!
^ This is me with A LOT of cookies!!!
Do YOU want cookies?
Stay tuned to this page for updates on the next Cookies4Sophie Cookie Pop-up.
The price is always “Give what makes your heart feel good!”
Some more details about the cookies:
* 6 cookies per bag
* Cookies will be a random assortment of deliciousness. You get what you get, and don’t throw a fit. But don’t worry, you’ll love them!
* All cookies are homemade, made by kids in home kitchens. We will all wear masks and be extremely careful.
* Unfortunately, we can’t accommodate any dietary restrictions or preferences.
* You’ll need to pick your cookies up at Santo on the designated pick up day during a pick up window.
^ This is me baking cinnamon rose cookies, one of my favs. I have a lot of favorites!
I hope you will join us in trying to give my friend, Sophie, a miracle. Everything we accomplish is because of our amazing community of bakers, sellers, and cookie lovers. Thank you for being a part of our story!!!
With hope, butter, and love,
Dana, Sophie, and the Cookies4Cures kids
PS. Learn more about Sophie at Sophie’s Neighborhood !
More information about Sophie's Neighborhood: We are a 501c3 dedicated to raising research funding to find a cure, treatment or therapy for a progressively crippling childhood genetic disorder, Multicentric Carpotarsal Osteolysis (MCTO.)
PPS. Here is our main page, Cookies4Cures, and our other campaigns:
Read all about SMA and our friend Ben at Cookies4SMA !
Read all about PANS and our friend Ollie at Cookies4PANS !
Read all about Batten and our friend Mila at Cookies4Mila !
Organizer
Alexis Tygenhof Perella
Organizer
Boulder, CO
Sophie's Neighborhood
Beneficiary