Marfan Syndrome and morbide scoliosis at age 13

Loving young Emily Born on 02 May2009.Struggles with heavy genetic condition of “Marfan Syndrome” And constant pain by “Scoliosis” Her daddy and granddad died at young age by sudden dead on “Heart-Aorta burst” Firstly Emily need urgent operation to reduce mis grown on her Spine With gives less pain, please! help this young girl.

Belgium got the most specialized known hospital care in Europe for Orthopedic Surgery In Leuven/Pellenberg

We need take Emily. a. s. a. p. For her mutch needed operation So the pain gets less or hopefully stop.

Maria Mum need pay for specialist appointments Not all get refunded.

The trip Abroud Cost Paspoort Fees

Transport

Hotel Recovering time Of week.

Do you want to help this young girl?

Many thanks from Emily and everybody ho love Emily and her mum!

See this movie at You tube  from Emily in hospital ho was on the news television in England:

https://youtu.be/Cgt_yqprMcY

Marfan syndroom from a young child.

Marfan syndroom!  Thank you so much!