Help Amira Defy SMA, Give Her a Chance to Walk!

Dear friends, family, and kind-hearted strangers,

We come to you today with heavy hearts and a profound sense of hope. Our precious daughter, Amira, has been battling a relentless foe since the day she was born – Type 1 Spinal Muscular Atrophy (SMA). It's a cruel and unforgiving condition that, without treatment, claims the lives of 100% of sufferers by the tender age of 2. Amira's life has been a constant struggle, but amidst the darkness, there is a glimmer of light - a treatment that has given us hope, a chance at life.

Amira is a fighter. From her very first breath, she defied the odds. Her smile, though limited by her condition, radiates love and joy. Every day we spend with her is a precious gift, but we know that the clock is ticking. SMA is a merciless thief, robbing children of their strength, mobility, and, ultimately, their lives. But Amira has received a miracle – a newly created treatment that has stopped the impending 2-year life expectancy clock from chiming out.

Yet, there's a cruel uncertainty that accompanies this newfound hope. While the treatment has halted SMA's deadly progression, no one can tell us for certain how long Amira has. Each day is a blessing, but it also carries the weight of the unknown. Will it be months or years? We hold our breath with each passing moment, cherishing every laugh, every milestone, and every precious memory.

But we need your help to keep this hope alive. The cost of Amira's ongoing treatment, which includes physiotherapy and other essential therapies, is staggering. We've already exhausted our savings, and the financial burden is overwhelming. That's why we're reaching out to you, our extended family, and compassionate souls who might be reading this.

Every pound you contribute will go towards ensuring Amira continues to receive the care she so desperately needs. Physiotherapy, occupational therapy, and specialized treatments have become a lifeline for our little warrior. It's these therapies that enable her to make strides against this relentless condition, to defy the odds, and to experience the world in her own unique way.

Your support isn't just about giving money; it's about giving Amira a chance to experience the beauty of life, to continue defying the odds stacked against her. With your help, we can provide her with the best possible care and unlock the potential hidden within her tiny frame.

Please, open your hearts and wallets to Amira. Together, we can be the driving force that helps her battle SMA, one therapy session at a time. No donation is too small, and every contribution brings us closer to securing Amira's future.

Thank you for taking the time to read Amira's story. Your generosity and kindness mean the world to us, and they mean even more to Amira. Let's unite and show her that she is not alone in this fight, that there is an army of love and support standing by her side.

With heartfelt gratitude,

Amira's Family, Wales, UK