The Hunt 2 Cure CMT
Donation protected
Our 3 year old son Hunter is battling Charcot-Marie-Tooth Disease Type 4B3, a rare progressive neuromuscular disorder with no cure or treatments.
Untreated Hunter will end up wheelchair bound unable to move his hands and legs and potentially blind and or deaf.
Unwilling to simply watch Hunter waste away we founded the CMT4B3 Research Foundation to facilitate cutting edge scientific research that will help thousands of children suffering from rare neuromuscular diseases.
This foundation is now our life's mission. The clock is ticking so there is no time to waste. We are working at warp speed, in the last 11 months, we set up the Foundation, held the first International CMT4B3 Research Symposium, established a world renowned Scientific Advisory Board and targeted research projects.
Unfortunately drug development, especially Gene Therapy, is extremely expensive. And to make matters worse the treatments become less effective the older the patients get. This is why we need your help now!
No donation is too small. Every dollar brings us one step closer to developing a treatment!
CMT4B3research.org
Organizer and beneficiary
Brett Schultz
Organizer
New York, NY
Iris Schultz
Beneficiary