Help with medical bills, treatments & procedures.

Hi I’m Jeremy,

If you're here that means you’ve heard my story on The Secret Room Podcast. Thank you for coming to support me in my time of need, I appreciate you!

I’d also like to thank Ben for his generosity in helping me get the assistance I need as well as being an excellent listener, his supportive words and being an overall thoughtful and kind human.

The proceeds from this fundraiser will go towards paying off medical debt, allowing me to try some possible life extending procedures and treatments not covered by my insurance, taking some time off to receive and recover from those procedures and treatments and paying it forward to other Marfans related charities and awareness campaigns.

Ben and I recorded this episode a few months back so here is an update for you. Overall, I’m doing well, there are good days and bad days but I believe that’s just part of the human experience. I’m still going in for biweekly evaluations that include echocardiograms, chest X-rays and bloodwork. I also do a more in depth evaluation every other month that includes MRIs and some other tests, scans and monitoring. Currently, we’ve exhausted all treatments available through my medical plan and they have all unfortunately been ineffective.

I had my last evaluation at the end of December and while there’s still a lot of issues going on within me things were no better, no worse and I choose to look at it as “no news is good news.” Mentally, I’m still hanging in there, I have moments where I get pretty overwhelmed but I have an amazing therapeutic support team that helps me get through those low spots. My focus is still, and will remain, making the most of everyday with my family.

I have created an email, that you can find in the contact section, that you can reach out to me through for questions, words of support and updates on my situation. I understand that times are tough for a lot of us these days, so I want to thank you again for any financial support you are able to give. If you are unable to afford financial support, any encouragement and well wishes are also equally appreciated!

Please remember that life is precious, hug your loved ones and tell them how much they mean to you, go out and do that thing you’ve always wanted to try, let go of whatever it is that’s been weighing on you and make the most of it.

Thank you again,

Jeremy