Healing Jes
Donation protected
My name is Jes, and I'm one of the #MillionsMissing my life because I have ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). On a great day, I can get out of bed, take a shower, fix my own food, draw on my iPad with my beloved Apple Pencil, and maybe go to an appointment or meet a friend. On a bad day, I only get out of bed to make it to the bathroom; showers are too much energy and I need my family to get my food for me, if I feel like eating at all. I can't work, or travel, or drive. I use a cane to help me balance because I have frequent dizzy spells. This is now my life.
My life used to be all about making art, teaching art, homeschooling my son along with other people's children. I loved volunteering in the homeschooling community, in my own community and in the local art scene. My love of learning often led me to one type of class or another. Often I'd be learning new art making techniques, or business skills, or personal development. I was a yoga lover and did ninety minutes of yoga five times a week. I loved going out to dinner with my friends trying and reviewing vegan foods throughout our city. I miss going to my husband's gigs and seeing live music in general. I attended as many art openings and shows as I could manage to schedule. I had a busy, exciting life!

Doctors argue about how to treat this illness, and I've been at a loss of what to do next. After a lot of research, we may have found our answer... In this day and age, many answers do not fall under the health insurance umbrella. And this treatment does not. We are raising money to help us pay for the first year of treatment. This is where I will be assessed, tested, and guided to find the right treatments that can help me heal. This money will pay for testing, supplements, doctor's visits, and medications. I'm feeling hopeful about this possibility, and we are committing to trying their recommendations for at least a year.
You may be asking, "why don't you pay for it yourself?" Well, we (my husband, and I) are dreamers. We believe in creativity and we've been following our passions as we raise and homeschool our 11 year old son. Alex (hubby) teaches guitar lessons, plays music professionally, and created 52 episodes of a podcast for kids. He is now pursuing full time work with more security, and possibly health insurance. But without my income potential, we just haven't been able to do more than make ends meet. We live in a great community in Atlanta with amazing support from our friends. Our little open floor plan apartment is about 500 square feet, and we happily make it work. This money is just out of our potential at the moment. We plan that in a year's time, Alex will be in a position to be able to provide enough to cover future costs of this treatment program.
I would love that in a year's time I could get back to making art the way that I want to, and get back to my career. I'm hopeful that I may be able to return to some of my "missing" life. It would mean the world to me to be able to try this treatment. The hope alone is bringing me comfort. Being this way with doctors mostly turning their back to the illness has been lonely and frustrating.
I met Dr. Karen Bullington of the Holtorf Group today (July 13, 2016) for the first time. She took 18 vials of blood for 28 tests. I scheduled my first (of at least 6) IV treatment for next week, and I start a new adrenal repair supplement tomorrow morning. Things are already starting and hopefully working. We will find out a lot more at my next appointment where Dr. Bullington will assess all my tests and give me a treatment plan. This is all possible because of you!
My graditude for your help is so deep and wide, it's hard to express. I plan to be open and public about how the treatment is going, because I really want you to feel like you are on this journey with me. I want you to know that your money went to good use and is helping a person in need.
My life used to be all about making art, teaching art, homeschooling my son along with other people's children. I loved volunteering in the homeschooling community, in my own community and in the local art scene. My love of learning often led me to one type of class or another. Often I'd be learning new art making techniques, or business skills, or personal development. I was a yoga lover and did ninety minutes of yoga five times a week. I loved going out to dinner with my friends trying and reviewing vegan foods throughout our city. I miss going to my husband's gigs and seeing live music in general. I attended as many art openings and shows as I could manage to schedule. I had a busy, exciting life!
Doctors argue about how to treat this illness, and I've been at a loss of what to do next. After a lot of research, we may have found our answer... In this day and age, many answers do not fall under the health insurance umbrella. And this treatment does not. We are raising money to help us pay for the first year of treatment. This is where I will be assessed, tested, and guided to find the right treatments that can help me heal. This money will pay for testing, supplements, doctor's visits, and medications. I'm feeling hopeful about this possibility, and we are committing to trying their recommendations for at least a year.
You may be asking, "why don't you pay for it yourself?" Well, we (my husband, and I) are dreamers. We believe in creativity and we've been following our passions as we raise and homeschool our 11 year old son. Alex (hubby) teaches guitar lessons, plays music professionally, and created 52 episodes of a podcast for kids. He is now pursuing full time work with more security, and possibly health insurance. But without my income potential, we just haven't been able to do more than make ends meet. We live in a great community in Atlanta with amazing support from our friends. Our little open floor plan apartment is about 500 square feet, and we happily make it work. This money is just out of our potential at the moment. We plan that in a year's time, Alex will be in a position to be able to provide enough to cover future costs of this treatment program.
I would love that in a year's time I could get back to making art the way that I want to, and get back to my career. I'm hopeful that I may be able to return to some of my "missing" life. It would mean the world to me to be able to try this treatment. The hope alone is bringing me comfort. Being this way with doctors mostly turning their back to the illness has been lonely and frustrating.
I met Dr. Karen Bullington of the Holtorf Group today (July 13, 2016) for the first time. She took 18 vials of blood for 28 tests. I scheduled my first (of at least 6) IV treatment for next week, and I start a new adrenal repair supplement tomorrow morning. Things are already starting and hopefully working. We will find out a lot more at my next appointment where Dr. Bullington will assess all my tests and give me a treatment plan. This is all possible because of you!
My graditude for your help is so deep and wide, it's hard to express. I plan to be open and public about how the treatment is going, because I really want you to feel like you are on this journey with me. I want you to know that your money went to good use and is helping a person in need.
Organizer
Jes Gordon
Organizer
Decatur, GA