Oliver Barlows Fundraiser

Hi there

The Oliver barlow charity car run has been set up by olivers wonderful uncle,

Daniel kenneally and family.

The fundraiser is on Monday the 31st of October (Bank holiday) meeting at 12 o clock in the old walls bar and restaurant  carpark,liscarroll,Co cork.

It's a get together of car enthusiast's , friends and family to raise funds and just  as importantly  awareness of this devasting life limiting disease.

A small fee per car applies on the day towards the charity event where there will be raffle tickets available to buy on the day with lots of prizes to be won.

We hope that over the next couple of years this fundraiser will  grow in size  and create a greater awareness  about duchennes muscular dystrophy DMD,  which affects about 1 in 3600 boys and 1 in 50 million girls yearly.

It's a charity event to help with olivers medical costs , towards equipment  and  olivers future needs. 

Oliver is a beautiful,funny,cheeky  happy young,(almost 6yr old boy)  without a care in the world . Just like most other boys and girls his age but unfortunately  with duchennes muscular dystrophy.(dmd)

This is a  genetic disease which starts to affect his muscles from the age of 6yrs old onwards,  starting in his calves  affecting his ability to walk, run or even get up from the floor.

Unfortunately  oliver will be wheelchair bound by the time he's 9-10 yrs old depending on how quickly the disease spreads. 

It then moves up his body to his arms and hands and these too will become useless to him. 

It will then reach his vital organs, lungs, heart etc and  nothing can be done for our boy .

Some boys and girls don't make their 10th birthday and most will not  make it to their  late teens, with all eventually being taken from their loving parents and family far far too soon.

This is the reality and nightmare that any parent has to face each day when their perfect child has duchennes muscular dystrophy.  

At present there is no real treatment  or cure for duchennes and its100% fatal.

We  pray for a cure for our boy ànd indeed all other boys and girls with duchennes but time is not on their side and to have to watch this  disease slowly take our boys future away from him and us breaks us daily but we carry on because we must as any parent would do for their child no matter what it takes. 

Kind regards

Olivers loving parents...

Simon & siobhan barlow.