Main fundraiser photo

Rebecca's Chronic Lyme SOT Therapy Treatments

Donation protected
My name is Rebecca and this is my story into the last 2 years of this journey that has led me to discover, I suffer from Chronic Lyme Disease.

For anyone who doesn’t know, Lyme disease along with other co-infections is basically a "super bug" that unless caught immediately, becomes chronic and can quickly affect many if not all systems of the body. Over time the constant burden it has on the immune system wears the body down and the symptoms can become very debilitating.
Now that being said, let me take you back to when things went sour. I went in for a routine teeth cleaning at my dentist. He found a lesion on the right underside of my tongue. Immediately, he called the oral surgeon and said that he was concerned and I should probably be seen right away. I saw the oral surgeon and to his discretion, he recommended getting a biopsy done. I went in and did the procedure. As I was recovering about five days after, I developed swollen lymph nodes and my right shoulder was becoming sore and had less range of motion. In the middle of the night the pain was severe and my shoulder was completely immobilized. I was rushed to the hospital where they did x-rays and blood work. The doctors said my blood work was very high in inflammation. He recommended follow up with an orthopedic surgeon.
It took about three days and then out of the blue, I felt my body coming back to movement again.

Two weeks later, I was at work and again I started to get hot and my right wrist was swelling and turning red. By the time I got home my other hand was developing the same symptoms and I could not move my hands or wrists. This then moved throughout my body locking up my knees, hips, arms and feet. I also experienced severe stomach pain, joint pain, hair loss, sleep disorders, heart and chest pain, headaches, vision problems, brain fog, memory loss, anemia, and debilitating fatigue. The doctors could not decide what was wrong and ran numerous tests, everything you could imagine from rheumatologists, hematologist, infectious disease, and immunologist to say I have seronegative inflammatory arthritis but they don't know why? What causes that?
Nothing got better and I had to quit my job and survive on the little savings I had left.

With my wellness background, I became my own advocate and took my rage and focused on research and alternatives to find out WHY? I was disappointed in traditional treatment options. I only went because insurance would cover medications I thought I needed. So when my symptoms continued to worsen, I needed answers.The mainstream lyme tests I took came back negative twice. The third one came back positive but I was still swept under the rug saying that it doesn't show all the markers. I had every single symptom in the book. I finally found a compassionate functional medicine doctor (who also has lyme disease) that would listen and review all my 2 years of blood work and questionable diagnosis that could not be explained?

The doctor told me I needed this exclusive test done through Vibrant Lab called the Tick Borne 2.0. This will give us the answers. This test was out of pocket at $1000. It took a while to save up and through friends helping out along the way I finally got the test.

Result came back 3 weeks later and I was absolutely diagnosed with Lyme Disease and 12 other co-infections/viruses. I was finally justified but also extremely scared. The Naturopathic doctor and I went through each infection one by one and she said with the number of antibodies, I have been suffering for a very long time and I am now to the point of being chronic. This also explained even going back 7 years when I was diagnosed with Epstein Barr Virus and nothing was done. She said that everything I have gone through in the traumas has stored up in my body and cells and now it is coming with vengeance. Certain treatment plans will not be beneficial now. Lyme is the great imitator disease and is extremely stealthy. Since mainstream medicine has not caught up with just how tragic these tick borne diseases/co-infections can be you have to come at it with different treatments.

I have made some improvements along the way with herb therapies, biofilm cyst busters, immunotherapy IV's, bacterial, steroid injections, detox methods, adrenal therapy, and vitamin and mineral supplementations. My treatments have not yet restored my health enough. I still wake up and go through my day of russian roulette, meaning at any time something can and will trigger me to become ill or not be able to function properly. I have damage throughout my tissues, cells and joints already. The bacterial overload is replicating in my body. By looking at me one would never know how tormented I feel but I am strong and have a huge faith in GOD.

Right now, I am willing to try this targeted treatment that is very beneficial and could help me. This treatment is called SOT Therapy and stands for Supportive Oligonucleotide Therapy and the treatment is based on the patient's unique genetic molecules. It has been successful with cancer patients and many Lyme patients are getting rid of all of their symptoms making them able to return to a normal life. Of course, with this disease being chronic there are no guarantees. SOT is capable of identifying the specific gene sequences of different targets such as cancer, lyme, co-infections and other viruses. The lyme spirochetes have a life cycle of 80 days. It is the longest life cycle of any bacteria in science and it has one of the most complicated gene sequences. Once you receive your SOT molecules, they are at work 24-hours a day, seven days a week for up to six months inhibiting the replication cycle of your target lyme bacteria.

Each treatment is only for that specific infection. SOT functions as a “molecular hit-man” in that it is constantly searching out and targeting the lyme species, co-infections or viruses. Since I have many, my treatment protocol would require at least a minimum of three. (1st Borrelia Burgdorferi, 2nd, Bartonella Quintanta and 3rd Epstein Barr). Each one costs $2500 per treatment. This totals $7500. I would have to be off certain herbs, medications and biofilm busters 2 weeks prior to blood draw and treatment. This would be administered through an IV infusion 90 minute treatment and about a month apart.

Additional therapies are needed because the lyme destroys the immune system. There are tens of thousands of stories of the people suffering from this disease. People are spending their life savings, selling all of their possessions, and taking out huge loans to pay for this disease to be treated due to the lack of insurance assistance.

How can you help? I have a short window to get these treatments done and throughout these past years I have devoted my time, money and effort just to not only help myself but others that need to talk, cry or just be there because no one would listen. I still force myself to get up everyday because the two things that are dear to my heart and motivate me is my beloved Mac (my pot belly pig). He needs me as much as I need him. He also has health conditions so I focus my energy for him and my second passion is fitness. The challenge of mentally and physically moving have never stopped. Teaching fitness is my joy and helping people that have challenges and disabilities help me to be there motivation.

If you feel led to donate any amount of money, even a small amount, it would be an enormous blessing. My mission is to get back to living life and inspire others along the way be spreading awareness. Your prayers, love and support are deeply appreciated.

Final note, please be kind to others. This disease affects every single person differently. What you see on the outside is not what you see on the inside. Research and seek out support.
Thank you for hearing my story.

Kind Regards,

Rebecca




Donate

Donations 

  • Pamela Childs
    • $100
    • 7 mos
  • Anonymous
    • $1,985
    • 2 yrs
  • David Sharpe
    • $200
    • 2 yrs
  • Bill V
    • $20
    • 2 yrs
  • Anonymous
    • $300
    • 2 yrs
Donate

Organizer

Rebecca Schilling
Organizer
Asheville, NC

Your easy, powerful, and trusted home for help

  • Easy

    Donate quickly and easily

  • Powerful

    Send help right to the people and causes you care about

  • Trusted

    Your donation is protected by the GoFundMe Giving Guarantee