Help The Burnses with a defibrillator
Donation protected
This is an extremely hard thing to do. Despite the size of my mouth, I have always had a problem asking for what I really need.
There is no easy way to say this.
In late November, I was diagnosed with Class C heart failure and will be fitted with a defibrillator on Jan 2nd. In one week. One can't fully explain the extremely difficult and acary a time this is and will be a challenging time emotionally and physically for my family and I.
There is a hereditary gene I have that is closely linked to arrhythmias, hocm, and heart failure. This heart failure "gene" most certainly played a part in my father's death at 38.
I think of my father. I think of Larry. I think of Bob and Megan. I think of the blessing that I have. A warning in the shape of a timeline.
The Shawshank Redemption is my favorite movie of all time.
For the better part of a month, I've heard Morgan Freeman's voice in my head:
"Get busy livin', or get busy dying. Damn right."
But first financial security for my family and I while I recover and make this transition.
Needless to say, there will be extensive costs in traveling to Milwaukee for near-monthly testing and implantables in the coming year. This will be exacerbated greatly by my income disappearing for the next 2 months.
I will unlikely be able to return to my job in manufacturing. . .electromagnetic energy.
The stress and fear will be enough to deal with, and only exacerbated by financial instability.
Between my lifelong anxiety and this. . .I am going through a lawyer for disability.
And that takes time. In the meantime, I need to focus on my recovery and listen to my cardiology team.
We will need about to $15,000 to break even between the 2-3 month layoff of my job, while I recover, and miscellaneous medical costs including transportation, lodging, meds, cpap supplies, and a whoooole lot of echos.
We understand that $15,000 is a big ask. We're all doing what we can. It would mean more than the world to my family and I. Heart, mind, and Soul. A small sense of security is worth more than gold.
IMPORTANT NOTE/PUBLIC SERVICE ANNOUNCEMENT:
Please, if you take nothing else from this post: If you have a history of heart failure, death, etc. in your family, please get yourself gene tested. There is a 50% heredity rate for a gene that causes arrhythmias, hocm, and heart failure. Do it for your family, do it for yourself.
My father died of a sudden heart attack at 38. Since 1981 we have learned much. Not only in the way of cardiac
"hardware", but in genetics.
Be well.
And know you are loved.
Organizer
ROBERT BURNS
Organizer
Oshkosh, WI