Rubies Road to Health & Healing!

Hi I am Rubie’s mum Vicky.

Rubie has been very poorly for over 14 months now with continuous weekly hospital visits,

She has been through so much & is such a strong, brave beautiful human!

We need to get her a lot of alternative therapies to detox her body & get her strong again.

So many questions with no answers!

Just struggles, pain & no end in sight.

Rubie is so kind, caring & happy, takes everything in her stride and makes me so proud.

We were told chronic ITP, Neutropenia, Evans syndrome, lymphoma!

The list goes on & being called a medical mystery has been so heartbreaking & draining.

Finally we have been told she has an extremely rare genetic disease called Socs1

It is going to be a long road of meds, monthly scans, a lot of hospital time.

I want to give her everything, for the last 14 months she has sat in bed, not able to go out or do normal child activities due to risk of heavy bleed & high infection risk.

It has broken my heart, stopped her life and now hopefully we can target her issues and get treatment.

Rubie is 1 of 20 in the whole world to have this genetic disorder.

We have no idea what next, Coventry hospital could not help, Bham childrens hospital have tried hard, next Great Ormond street!

Please help me, in giving Rubie a better chance of life. Everything means so much right now xx

The first part of healing I am looking it to is EE Systems which gives her cells healing.

A 24 hour session costs £750!

We will need to stay in London for this and I am hoping to get a package deal so she can go on every day for a week this will cost £3500

For the Quantum healing there is a bigger set up with more units of healing in Ireland too! 

Hospital visits cost £100 per time and I am not receiving any benefits & still waiting for DLA since January!

Please know that every penny is so appreciated xx