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Help single mom with rare chronic illness get car

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Hi, my name is Alanna. I am a single mom to an amazing autistic little girl with Tourette Syndrome. In May 2024 I found out I have Median Arcuate Ligament Syndrome (a rare chronic illness) and 2 Pancreaticoduodenal Artery Aneurysms (rare aneurysms).

I had surgery November 20th, 2023 to release my Median Arcuate Ligament. I was supposed to have surgery for my aneurysms, but apparently they are extremely rare and not much is known about how to treat them. My general surgeon said it was new territory for them and referred me to vascular surgery.

On February 7, 2024 I found out that my celiac artery was showing recompression. So my MALS surgery was unsuccessful. I am currently seeing a vascular surgeon at USF in Tampa for my MALS and aneurysms. This surgeon told me that I also have tortuous arteries in my abdomen and that it is rare and uncommon. He didn't know what could be causing it so he sent me to get labs done for connective tissue diseases. Which my ANA came back positive/abnormal, high speckled pattern, and high C3 complement. He now wants me to get my CTA scan of my abdomen/pelvis and chest done sooner so we can meet sooner to discuss everything.

The donations will be used towards getting a new vehicle since we no longer have one. My doctors are 1-2 hours away from where we are, so being able to have our own transportation again would be a huge blessing!

You can follow my journey on Tiktok: @chronicallyill_advocate

May 1, 2023 - Median Arcuate Ligament Syndrome
MAY 1, 2023 - Fusiform and saccular pancreaticoduodenal artery aneurysms
May 1, 2023 - Celiac artery stenosis
May 22, 2024 - Torturous arteries
June 06, 2024 - lab work came back positive/abnormal ANA, high speckled pattern, high C3 complement

After we get on our feet I would like to start a non profit that will aid in medical research and community support for people with Median Arcuate ligament syndrome and aneurysms. No one should have to experience such hardship. I would like to help as many people as I can! Thank you from the bottom of my heart!

Organizer

Alanna Warren
Organizer
Auburndale, FL

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