A chance for better breathing

Hubert is very brave but fights for every breath. Any serious infection ends in pneumonia and intubation. Hubert has suffered from infantile cerebral palsy since birth, but it is not the palsy that will slowly kill him, but Tracheomalasia. We are raising funds to be able to start treatment at the Boston Clinic in the US. This is Hubert's last chance to breathe normally. The best specialists are just at the Tracheomalasia Treatment Clinic in Boston. Without funds, we are not able to bring specialists to the UK and thus give Hubert a chance to be treated. Currently, Hubert is intubated and is in a hospital in Manchester. We would like to give him a chance to continue living and we need your financial support. It's hard to ask for something but as parents we have no choice. Please help us raise funds to bring the best specialist from the US to the UK .

Status as of 21/04/2025- The condition is stable . There will be another attempt at de-intubation but it all depends on whether Hubert will breathe. Next attempt of odintibition 22.04.2025 . Hubert todey 24.04.2025 - high fieber.