Raise For Ace

I want to thank everyone who contributed to my patient's P Pod chair this Christmas! His family was very moved by your generosity! They ended up deciding to keep going with their son's fundraiser. Their house and van are not accessible. And there are endless needs not covered by insurance.

Ace was born prematurely. At 11 days old, he suffered a bilateral hemorrhagic stroke, leaving him a quadriplegic and nearly blind. He suffers from Cerebral Palsy and Epilepsy. In 2022, he developed a blood clot. This damaged one of his kidneys, so now he only has one functioning. Since I've been caring for him, he's been hospitalized for acute renal failure. He has since recovered, but will remain high risk for this happening again. Ace is tube fed and oxygen dependent. He struggles to clear his secretions, and requires around the clock suctioning with nursing care. He also requires intermittent cathing to empty his bladder. Most recently, we discovered he has hip dysplasia. We are waiting to see if this requires surgery. My patient struggles with chronic pain. He is nonverbal, but able to communicate his discomfort by crying out. He needs repositioned frequently. And sometimes it takes Tylenol or Clonazepam to calm him.

Ace is 6 years old with the sweetest little smile. He loves to listen to books, music, watch shows, and he smirks as his siblings quarrel. He is a happy boy! You gifted him a P Pod chair for Christmas. For that, we are grateful! Now, we are targeting his needs for a ramp, lift, accessible van, and anything else not covered fully by insurance. Please consider donating to my patient today. It will help give Ace a better quality of life. He is the cutest little boy! He impacts the lives of all who meet him with his sweet demeanor and calm presence. "He's an old soul," says his mother, "our Snug Bug."