A wish for winter
Donation protected
Hi everyone, I was unsure at first Wether or not to set up a go fund me page for my daughter because I've always kept things relatively private with regards to my children's illness. I don't like asking for anything and this is something that I've put alot of thought into but if I don't at least try for her she will miss out on something she whole heartedly deserves. I have 4 children 3 of them was born with a genetic condition called chronic granulomatous disease. Or cgd for short. A horrible life limiting disease which means she can't fight off bacterial or fungal infection properly and relies on taking phrophlatic antibiotics daily. Any bacterial or fungal infection could be fatal and we have to keep her away from straw, mulch woodchippings cut grass etc. The list is endless :( The only cure for her is a bone marrow transplant which was going to take place in a few years time as her older brother also needs a bone marrow transplant. Her older sister had a transplant 2013 and is now cgd free ☺. As winters health has deteriated slightly doctors at great ormond street want her to have a bone marrow transplant this year. As she's not yet 3 she's not entitled to a wish from the make a wish foundation and I want to be able to take her and her brothers and sister on a disney holiday before she has to start the gruelling process of a bone marrow transplant. Thank you for reading.
Organizer
Danielle Smith
Organizer