Aaron's Super Wheels
Help our superhero Aaron get his super wheels!
This Go Fund Me is to help our friend, Tamra Leilani Wilkerson, raise the funds to get her son Aaron his wheel chair accessible van.
If you know Aaron, you know how amazing he is. Did you know that Aaron has
been home-bound even before the pandemic? The only way for him to get around is in his wheelchair. Tamra and his nurses diligently walk Aaron to and from school, in the rain or blazing hot sun.
Aaron has a special needs car seat, but he's grown so much and it requires two people to load and unload him safely. It's important to mention that Aaron's scoliosis has been getting worse, so the only way for him to travel safely and comfortably in a vehicle is in a regulation wheelchair accessible van.
Tamra's a single mom and kicking butt at all the things, but this is just one of many challenges on a day to day basis that can't be solved by her alone! A wheelchair accessible van would help Aaron get to school and doctor's appointments comfortably, attend family gatherings (when the pandemic is over), and maybe even go to the beach to get some fresh air and enjoy the outdoors with his mom and sister.
Join us in donating to Aaron's wheelchair accessible van. Let's get this guy his super wheels!
For a bit more background on Mister Aaron:
Aaron is a loving, rascal, 6-year old boy. He loves Captain America, Lightning McQueen, music, Jesus, and laughing. In January 2018, he was diagnosed with Late Infantile Metachromatic Leukodystrophy. Metachromatic leukodystrophy is a rare hereditary (genetic) disorder that causes fatty substances (lipids) to build up in the brain, spinal cord and peripheral nerves. The brain and nervous system progressively lose function. Symptoms include muscle wasting and weakness, developmental delays, progressive loss of vision leading to blindness, impaired swallowing , mental deterioration, an inability to control movements, seizures, and dementia. At this time there is no cure or treatment.
It's been difficult to watch him go from being a very verbal, kolohe, fun loving boy to a child that has lost his ability to talk, walk, eat, and is confined to a wheelchair. He receives all of his water, nutrition, and medicine through his GJ feeding tube. Even with insurance, many things (like a wheelchair accessible van) just aren't covered. He's had multiple surgeries, PT/OT/Speech therapy, and has a whole team of doctors. We want to give him the best quality of life possible while he is here with us.
Mahalo for your generosity, love and prayers,
#TeamAaron
